Western Sydney University, Australia.
Western Sydney University, Australia; Curtin University, Australia.
J Intellect Disabil. 2022 Dec;26(4):853-868. doi: 10.1177/17446295211032767. Epub 2021 Sep 1.
Self-management of type 1 diabetes mellitus (T1DM) can be challenging for people with intellectual disability. Often, parents provide health support due to lack of appropriate services outside the home. The study aim was to identify barriers and facilitators to T1DM self-management for young adults with intellectual disability and the implications for health promotion.
Five male participants with intellectual disability, aged 17-26 years, and seven parents were interviewed between October 2017 and February 2019. Interview data were descriptively analysed.
Two categories for barriers and facilitators were identified: 1) Diabetes self-management is complex (carbohydrate counting, blood glucose level monitoring, insulin therapy); 2) support for diabetes care (reliance on parents and carers, the National Disability Insurance Scheme, mainstream diabetes service support).
Parents are critical for the support of people with intellectual disability and T1DM in the absence of disability staff with appropriate health skills.
1 型糖尿病（T1DM）的自我管理对于智障人士来说可能具有挑战性。由于家庭以外缺乏适当的服务，通常由父母提供健康支持。本研究旨在确定智障青年 T1DM 自我管理的障碍和促进因素，以及对健康促进的影响。
2017 年 10 月至 2019 年 2 月期间，对 5 名年龄在 17-26 岁之间的智障男性参与者和 7 名家长进行了访谈。对访谈数据进行了描述性分析。
确定了两个障碍和促进因素类别：1）糖尿病自我管理复杂（计算碳水化合物、监测血糖水平、胰岛素治疗）；2）对糖尿病护理的支持（依赖父母和护理人员、国家残疾保险计划、主流糖尿病服务支持）。
在缺乏具有适当健康技能的残疾工作人员的情况下，父母对于智障人士和 T1DM 的支持至关重要。
