Penovich Patricia, Glauser Tracy, Becker Danielle, Patel Anup D, Sirven Joseph, Long Lucretia, Stern John, Dixon-Salazar Tracy, Carrazana Enrique, Rabinowicz Adrian L
Minnesota Epilepsy Group, St. Paul, MN, USA.
Comprehensive Epilepsy Center, Cincinnati Children's Hospital, Cincinnati, OH, USA.
Epilepsy Behav. 2021 Oct;123:108264. doi: 10.1016/j.yebeh.2021.108264. Epub 2021 Sep 2.
Disease-related treatment action plans for acute exacerbations providing information that may be helpful for self-management for patients and caregivers are commonly used for chronic conditions such as asthma and diabetes. However, among patients with epilepsy, a review of the literature suggested that the majority did not have an action plan in place for acute seizure treatment.
Currently, there is a lack of unified guidance on seizure action plans (SAPs) in the literature. In the authors' opinion, available formats have limitations for practical use and may not be easily customizable to individual patients, and they are not often designed to provide simple-to-follow steps for rapid immediate steps to determine and initiate appropriate treatment of seizure emergencies. Our group reviewed current examples of SAPs and provided guidance on the development of acute seizure action plans (ASAPs) designed to facilitate rapid, appropriate acute care in the community and to be as useful as possible for a wide range of care partners, including those with limited experience.
This paper provides agreed upon expert opinion recommendations and considerations for goals, development process, types of content, and format for an ASAP.
针对急性加重期的疾病相关治疗行动计划可为患者和护理人员的自我管理提供有用信息，常用于哮喘和糖尿病等慢性病。然而，在癫痫患者中，文献综述表明大多数患者没有针对急性癫痫发作治疗的行动计划。
目前，文献中缺乏关于癫痫发作行动计划（SAPs）的统一指导。作者认为，现有的格式在实际应用中有局限性，可能不易根据个体患者进行定制，而且它们通常并非设计用于提供简单易懂的步骤，以便快速采取立即行动来确定并启动对癫痫紧急情况的适当治疗。我们的团队审查了当前的SAPs示例，并为急性癫痫发作行动计划（ASAPs）的制定提供了指导，该计划旨在促进社区中的快速、适当急性护理，并对包括经验有限者在内的广泛护理伙伴尽可能有用。
本文提供了关于ASAP的目标、制定过程、内容类型和格式的专家共识意见建议及考量。
