Department of Nursing, Beijing Shijitan Hospital, Capital Medical University, Beijing, China.
School of Nursing, Capital Medical University, Beijing, China.
Eur J Oncol Nurs. 2021 Oct;54:102017. doi: 10.1016/j.ejon.2021.102017. Epub 2021 Aug 14.
This study aimed to explore the meaning of patient dignity at the end of life in traditional Chinese culture from perspectives of advanced cancer patients and their family members.
A descriptive qualitative study was conducted with 15 advanced cancer patients and 10 family members in a tertiary hospital in Beijing, China between March and July 2019. Data were collected through face-to-face semi-structured interviews and were analyzed using thematic analysis.
Dignity at the end of life in traditional Chinese culture were classified into four categories: (1) cultural-specific dignity, including themes of stigma-free, moral traits and "face"; (2) self-related dignity, including themes of staying healthy and alive, living a normal life as a normal person, spiritual peace, personal value and privacy; (3) family-related dignity, including themes of concerns to the family, not being a burden to the family, and family support; and (4) care- and treatment-related dignity, including themes of being respected, high quality service and disclosure of information and consent-based decision making.
Patient dignity at the end of life in traditional Chinese culture was relevant to the culture, the individuals, their family, and the care and treatment they received. Patient dignity is supposed to be supported by collaborative efforts from the family and healthcare professionals, and meanwhile taking patient's cultural background and personal wishes and values into account.
本研究旨在从晚期癌症患者及其家属的角度探讨中国传统文化中生命终末期患者尊严的含义。
本研究采用描述性定性研究方法，于 2019 年 3 月至 7 月在北京一家三级医院选取 15 例晚期癌症患者和 10 例家属进行面对面半结构式访谈，采用主题分析法进行分析。
中国传统文化中生命终末期的尊严可分为 4 个范畴：（1）文化特有的尊严，包括无污名、道德特质和“面子”；（2）与自身相关的尊严，包括保持健康和活着、像正常人一样过正常生活、精神安宁、个人价值和隐私；（3）与家庭相关的尊严，包括对家庭的关注、不给家庭带来负担和家庭支持；以及（4）与医护相关的尊严，包括受到尊重、高质量的服务、信息披露和知情同意决策。
中国传统文化中生命终末期患者的尊严与文化、个体、家庭以及所接受的医护有关。患者尊严应得到家庭和医护专业人员的共同支持，同时应考虑患者的文化背景、个人意愿和价值观。
