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肿瘤患者的污名化、歧视和疾病认知:一项横断面相关性研究。

Stigmatization, discrimination and illness perception among oncology patients: A cross-sectional and correlational study.

机构信息

Ondokuz Mayıs University Health Application and Research Hospital, Turkey.

Ondokuz Mayıs University, Health Science Faculty, Turkey.

出版信息

Eur J Oncol Nurs. 2021 Oct;54:102000. doi: 10.1016/j.ejon.2021.102000. Epub 2021 Jul 20.

DOI:10.1016/j.ejon.2021.102000
PMID:34492525
Abstract

PURPOSE

Many individuals who get cancer may be exposed to stigmatization from their close relatives and their entourage. This cross-sectional and correlational study was conducted in order to determine stigmatization, discrimination and perception of illness among oncology patients in Northern Turkey.

METHOD

The sample of the study consisted of 367 inpatients who were hospitalized in the oncology and hematology clinics of a University Hospital in northern Turkey between 31.01.2019 and 30.07.2019. Data were collected using the demographics form, Cataldo Lung Cancer Stigma Scale and Illness Perception Questionnaire.

RESULTS

The mean total score of the patients according to Cataldo Lung Cancer Stigma Scale is 30.4 ± 8.8. In this study, no statistically significant relationship was determined between Cataldo Lung Cancer Stigma Scale total score and Illness Perception Questionnaire sub-dimension scores (p > .05). It can be said that the oncology patients were exposed to stigmatization and discrimination, and that certain socio demographic and clinical characteristics such as sex, marital status, education level, employment status, diagnosis, and the clinical phase of the disease are significant predictors of Cataldo Lung Cancer Stigma Scale scores.

CONCLUSIONS

In order to help them express their feelings in oncology patients, reduce their anxiety, increase their adaptation to their illness and treatment, help them cope with the multi-faceted crisis caused by the disease and improve their quality of life, cancer stigmatization should be evaluated objectively.

摘要

目的

许多癌症患者可能会受到其亲属和周围人的污名化。本横断面相关性研究旨在确定土耳其北部肿瘤患者的污名化、歧视和疾病认知情况。

方法

本研究的样本包括 2019 年 1 月 31 日至 7 月 30 日期间在土耳其北部一所大学医院肿瘤和血液科住院的 367 名住院患者。数据收集采用人口统计学表格、Cataldo 肺癌污名量表和疾病认知问卷。

结果

根据 Cataldo 肺癌污名量表,患者的平均总分为 30.4±8.8。在这项研究中,Cataldo 肺癌污名量表总分与疾病认知问卷各维度得分之间没有显著的统计学关系(p>.05)。可以说,肿瘤患者受到了污名化和歧视,某些社会人口学和临床特征,如性别、婚姻状况、教育水平、就业状况、诊断和疾病的临床阶段,是 Cataldo 肺癌污名量表得分的显著预测因素。

结论

为了帮助肿瘤患者表达自己的感受,减轻他们的焦虑,提高他们对疾病和治疗的适应能力,帮助他们应对疾病带来的多方面危机,提高他们的生活质量,应该客观地评估癌症污名化情况。

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