Department of Dermatology, Venereology and Allergology, Wroclaw Medical University, Poland.
Acta Derm Venereol. 2012 Jan;92(1):67-72. doi: 10.2340/00015555-1193.
Stigmatization is defined as having a discrediting mark that leads to social discrimination and alienation. The aim of this study was to estimate the level of stigmatization experienced by patients with psoriasis. A total of 102 individuals with psoriasis were recruited and was assessed using the 6-item Stigmatization Scale and the 33-item Feelings of Stigmatization Questionnaire. In addition, quality of life, stress and depression were evaluated. The majority of patients felt that they were stigmatized by psoriasis. The most bothersome aspect was that other people stared at their skin changes. According to the 33-item questionnaire, anticipation of rejection and feelings of guilt and shame were the major aspects of stigmatization, the level of which correlated significantly with pruritus intensity, stress prior to exacerbation, depressive symptoms and quality of life. In order to decrease the stigmatization level in patients with psoriasis, greater effort is needed to raise awareness in contemporary societies that psoriasis is not contagious, but is a disease like many other chronic conditions.
污名化是指有一个抹黑的标志,导致社会歧视和疏远。本研究的目的是评估银屑病患者所经历的污名化程度。共招募了 102 名银屑病患者,并使用 6 项污名量表和 33 项污名感问卷进行评估。此外,还评估了生活质量、压力和抑郁。大多数患者认为他们因银屑病而受到污名化。最困扰的方面是其他人盯着他们的皮肤变化。根据 33 项问卷,对拒绝的预期以及内疚和羞耻感是污名化的主要方面,其水平与瘙痒强度、恶化前的压力、抑郁症状和生活质量显著相关。为了降低银屑病患者的污名化程度,需要在当代社会中做出更大的努力,提高人们的认识,即银屑病不是传染性的,而是像许多其他慢性疾病一样的疾病。