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朝着更注重对患者和公众参与医疗保健情况的报告方向发展。

Toward more mindful reporting of patient and public involvement in healthcare.

作者信息

Scholz Brett, Bevan Alan

机构信息

ANU Medical School, Ngunnawal Country, The Australian National University, 54 Mills Rd, Acton, ACT, 2601, Australia.

School of Psychology, Kaurna Country, North Terrace, The University of Adelaide, Adelaide, SA, 5000, Australia.

出版信息

Res Involv Engagem. 2021 Sep 9;7(1):61. doi: 10.1186/s40900-021-00308-8.

Abstract

Understanding of the value of patient and public involvement in research has grown in recent years, but so too has uncertainty about how best to practice and how best to report such involvement in research outputs. One way proposed to report such involvement is through checklists, such as the GRIPP2, which aims to improve quality, transparency, and consistency in such reporting. We critique the unproblematised use of such a tool because of two main concerns. First, being asked to complete a GRIPP2 for a recent publication felt divisive given that the service user researcher was as much a member of the authorship team as the other researchers (whose involvement did not necessitate a checklist). Second, checklists do not actually address the power imbalances and tokenism that is rife in patient and public involvement in research. Indeed, the false sense of objectivity fostered by meeting the minimum requirements of the checklist means that researchers may not go further to engage in reflexive research practices and reporting. Rather than rote use of such checklists, we recommend mindful reflexive reporting in research outputs of patient and public involvement processes. We also recommend future iterations of the GRIPP consider (a) incorporating criteria about whether the checklist is completed by or with service user researchers or not, (b) addressing criteria that position service user research as needing to be justified, and (c) expanding the "critical perspective" element of the checklist to explicitly consider power differentials.

摘要

近年来,人们对患者和公众参与研究的价值的理解有所增加,但对于如何以最佳方式实践以及如何在研究成果中最佳地报告这种参与,不确定性也在增加。一种建议的报告这种参与的方式是通过清单,例如GRIPP2,其目的是提高此类报告的质量、透明度和一致性。由于两个主要问题,我们对这种工具的不加质疑的使用提出批评。首先,鉴于服务用户研究人员与其他研究人员一样都是作者团队的成员(其他研究人员的参与并不需要清单),要求为最近的一篇出版物填写GRIPP清单会让人感觉有分歧。其次,清单实际上并没有解决患者和公众参与研究中普遍存在的权力不平衡和形式主义问题。事实上,通过满足清单的最低要求所营造的虚假客观性意味着研究人员可能不会进一步参与反思性研究实践和报告。我们建议在研究成果中对患者和公众参与过程进行反思性报告,而不是机械地使用此类清单。我们还建议GRIPP的未来版本考虑:(a)纳入关于清单是否由服务用户研究人员或与他们一起完成的标准;(b)解决将服务用户研究定位为需要有正当理由的标准;(c)扩展清单的“批判性视角”要素,以明确考虑权力差异。

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