Department of Health Promotion, School of Public Health, Sackler Faculty of Medicine, Tel Aviv University, Tel Aviv, Israel.
Minerva Center for the Interdisciplinary Study of End of Life, Tel Aviv University, Tel Aviv, Israel.
J Geriatr Psychiatry Neurol. 2022 Jul;35(4):627-635. doi: 10.1177/08919887211042937. Epub 2021 Sep 13.
We examined how family caregivers react, and what interventions they use in response to delusions exhibited by relatives with dementia in a community setting. Structured interviews were conducted with 68 family caregivers whose relatives were described as experiencing delusions based on the BEHAVE-AD or the NPI. Quantitatively, we cross-tabulated the type of response to delusion by the type of person providing the response and by the type of delusion manifested. Qualitatively, we analyzed open-ended responses to understand the types of caregivers' responses to delusions, the contextual circumstances, and the impact of the responses. Caregiver responses to delusions included "Explaining that the delusion was wrong" (34% of responses), "Trying to calm down" (27%), "Agreeing with the delusion" (13%), "Distracting" (12%), and "Ignoring" (10%). Responses including "Anger, yelling or scolding," were rare. The vast majority of reactions were by family caregivers of the persons with dementia. The relative frequency of the type of reaction tended to be consistent across delusion types. The qualitative analyses added some categories of reactions, but mostly highlighted issues to be considered when examining responses and their efficacy, including the use of multiple responses, and the manner and mood in which responses are conveyed. To cope with delusions, family caregivers develop intuitive intervention techniques. Understanding those interventions and reactions by caregivers and their relative efficacy can inform guidance programs for family caregivers. Improved support for family caregivers has the potential to positively influence the behavior of caregivers and older adults with dementia and improve their respective quality of life.
我们研究了在社区环境中,家庭照顾者如何对患有痴呆症的亲属表现出的妄想做出反应,以及他们使用了哪些干预措施。我们对 68 名家庭照顾者进行了结构访谈,这些照顾者的亲属被描述为根据 BEHAVE-AD 或 NPI 表现出妄想。定量地,我们通过提供反应的人的类型和表现出的妄想的类型交叉表列出对妄想的反应类型。定性地,我们分析了开放式回答,以了解照顾者对妄想的反应类型、情境背景以及反应的影响。照顾者对妄想的反应包括“解释妄想是错误的”(34%的反应)、“试图冷静下来”(27%)、“同意妄想”(13%)、“分散注意力”(12%)和“忽略”(10%)。包括“愤怒、大喊大叫或责骂”的反应很少见。绝大多数反应来自痴呆症患者的家庭照顾者。反应类型的相对频率往往在各种妄想类型之间保持一致。定性分析增加了一些反应类别,但主要强调了在检查反应及其效果时需要考虑的问题,包括使用多种反应,以及反应传达的方式和情绪。为了应对妄想,家庭照顾者会制定直觉干预技巧。了解照顾者及其相对有效性的干预措施和反应可以为家庭照顾者的指导计划提供信息。改善对家庭照顾者的支持有可能积极影响照顾者和患有痴呆症的老年人的行为,并提高他们各自的生活质量。