Freedman Daniel A, Grinspan Zachary, Glynn Peter, Mittlesteadt Jackson, Dawes Alex, Patel Anup D
Dell Medical School, The University of Texas at Austin, Austin, TX, USA.
Weill Cornell Medical Center, New York, NY, USA.
Child Neurol Open. 2021 Aug 31;8:2329048X211037806. doi: 10.1177/2329048X211037806. eCollection 2021 Jan-Dec.
The International Classification of Diseases (ICD) system includes sub codes to indicate that an individual with epilepsy is treatment resistant. These codes would be a valuable tool to identify individuals for quality improvement and population health, as well as for recruitment into clinical trials. However, the accuracy of these codes is unclear. We performed a single center cross sectional study to understand the accuracy of ICD codes for treatment resistant epilepsy. We identified 344 individuals, roughly half with treatment resistant epilepsy The ICD code had a sensitivity of 90% (147 of 164) and specificity of 86% (155 of 180). The miscoding of children with refractory epilepsy was attributed to the following reasons: 5 patients had epilepsy surgery, 4 had absence epilepsy, 4 patients were seen by different providers, and 1 patient was most recently seen in movement disorders clinic. ICD codes accurately identify children with treatment resistant epilepsy.
国际疾病分类（ICD）系统包含子代码，用于表明癫痫患者具有治疗抵抗性。这些代码将是识别个体以进行质量改进和人群健康管理以及招募进入临床试验的宝贵工具。然而，这些代码的准确性尚不清楚。我们进行了一项单中心横断面研究，以了解治疗抵抗性癫痫的ICD代码的准确性。我们确定了344名个体，其中约一半患有治疗抵抗性癫痫。ICD代码的敏感性为90%（164例中的147例），特异性为86%（180例中的155例）。难治性癫痫患儿的编码错误归因于以下原因：5例患者接受了癫痫手术，4例患有失神癫痫，4例患者由不同的医疗服务提供者诊治，1例患者最近在运动障碍诊所就诊。ICD代码能准确识别患有治疗抵抗性癫痫的儿童。
