Samuel J. Wood Library & C.V. Starr Biomedical Information Center, Weill Cornell Medicine, New York, USA.
Weill Cornell Medicine, New York, USA.
Patient Educ Couns. 2022 May;105(5):1057-1065. doi: 10.1016/j.pec.2021.09.012. Epub 2021 Sep 9.
To describe the types of decision-making support interventions offered to racial and ethnic minority adults diagnosed with breast or prostate cancer and to draw any associations between these interventions and patient-reported quality of life (QoL) outcomes.
We conducted literature searches in five bibliographic databases. Studies were screened through independent review and assessed for quality. Results were analyzed using inductive qualitative methods to determine thematic commonalities and synthesized in narrative form.
Searches across five databases yielded 2496 records, which were screened by title/abstract and full-text to identify 10 studies meeting inclusion criteria. The use of decision aids (DAs), trained personnel, delivery models and frameworks, and educational materials were notable decision-making support interventions. Analysis revealed six thematic areas: 1) Personalized reports; 2) Effective communication; 3) Involvement in decision-making; 4) Health literacy; 5) Social support; and 6) Feasibility in clinical setting.
Evidence suggests decision-making support interventions are associated with positive outcomes of racial and ethnic minorities with patient-reported factors like improved patient engagement, less decisional regret, higher satisfaction, improved communication, awareness of health literacy and cultural competence.
Future decision-making interventions for racial and ethnic minority cancer patients should focus on social determinants of health, social support systems, and clinical outcomes like QoL and survival.
描述为被诊断患有乳腺癌或前列腺癌的少数族裔成年人提供的决策支持干预类型，并探讨这些干预措施与患者报告的生活质量（QoL）结果之间的任何关联。
我们在五个文献数据库中进行了文献检索。通过独立审查筛选研究，并评估其质量。使用归纳定性方法分析结果，以确定主题共性，并以叙述形式进行综合。
五项数据库的搜索共产生了 2496 条记录，通过标题/摘要和全文筛选出符合纳入标准的 10 项研究。决策辅助工具（DA）、培训人员、交付模式和框架以及教育材料的使用是显著的决策支持干预措施。分析揭示了六个主题领域：1）个性化报告；2）有效沟通；3）参与决策；4）健康素养；5）社会支持；6）临床环境中的可行性。
有证据表明，决策支持干预措施与少数族裔患者的积极结果相关，这些结果与患者报告的因素有关，例如提高患者参与度、减少决策后悔、提高满意度、改善沟通、提高健康素养和文化能力意识。
未来针对少数族裔癌症患者的决策干预措施应侧重于健康的社会决定因素、社会支持系统以及 QoL 和生存等临床结果。
