Columbia University School of Nursing, New York, NY; Weill Cornell Medicine, Department of Population Health Sciences, Division of Health Informatics, New York, NY.
Columbia University School of Nursing, New York, NY; University of Connecticut School of Nursing, Storrs, CT.
Am J Infect Control. 2022 Apr;50(4):400-408. doi: 10.1016/j.ajic.2021.09.006. Epub 2021 Sep 17.
Pediatric catheter-associated urinary tract infection (CAUTI) prevention guidelines encourage family engagement; however, there is a dearth of research on parent-facing CAUTI prevention resources. We aimed to meet the learning needs of parents about CAUTI prevention in the hospital by developing and refining an educational pamphlet with parents.
Phase 1: We compiled existing evidence from CAUTI prevention guidelines and conducted a focus group with parents to form learning objectives. Phase 2: We developed prototype design elements, tested initial designs with a survey, and conducted qualitative participatory design sessions with parents to iteratively refine the pamphlet until design saturation was reached.
We identified the following key themes and preferences: (1) Clear boundaries for engagement (e.g., parents would not be emptying the catheter); (2) Positive, actionable framing (e.g., what should proper catheter positioning look like?); (3) What to expect (e.g., is the catheter painful for my child?); (4) Parents considered both their and their child's comprehension of the content when providing feedback.
Overall, we demonstrated the utility of remote participatory design methods in developing and refining a CAUTI prevention resource based on parents' preferences. Future research should consider adapting these methods and implementing formal evaluation for comprehension for eventual integration into clinical practice.
儿科导尿管相关尿路感染（CAUTI）预防指南鼓励家长参与；然而，针对面向家长的 CAUTI 预防资源的研究却很少。我们旨在通过与家长共同制定和完善教育手册来满足家长对医院 CAUTI 预防的学习需求。
第 1 阶段：我们从 CAUTI 预防指南中整理了现有证据，并与家长进行了焦点小组讨论，以制定学习目标。第 2 阶段：我们开发了原型设计元素，通过调查测试初始设计，并与家长进行了定性参与式设计会议，以迭代完善手册，直到达到设计饱和。
我们确定了以下关键主题和偏好：（1）明确参与的界限（例如，父母不会排空导管）；（2）积极、可操作的框架（例如，正确的导管定位应该是什么样子？）；（3）预期内容（例如，导管对我的孩子有疼痛感吗？）；（4）家长在提供反馈时，会同时考虑他们和孩子对内容的理解。
总的来说，我们展示了远程参与式设计方法在制定和完善基于家长偏好的 CAUTI 预防资源方面的实用性。未来的研究应考虑采用这些方法并进行正式的理解评估，最终将其纳入临床实践。
