Arcia Adriana, Stonbraker Samantha, Mangal Sabrina, Lor Maichou
Hahn School of Nursing and Health Science, University of San Diego, 5998 Alcalá Park, San Diego, CA, 92110, United States, 1 619 260 7548.
College of Nursing, Anschutz Medical Campus, University of Colorado, Aurora, CO, United States.
J Particip Med. 2024 Dec 13;16:e64508. doi: 10.2196/64508.
Participatory design is an increasingly common informatics method to engage intended audiences in the development of health-related resources. Participatory design is particularly helpful for developing information visualizations that aim to improve health outcomes by means of improved comprehension, communication or engagement, and subsequent behavior changes. Existing literature on participatory design lacks the practical details that influence the success of the method and does not address emergent issues, such as strategies to enhance internet-based data collection. In this tutorial, our objective is to provide practical guidance on how to prepare for, conduct, and analyze participatory design sessions for information visualization. The primary audience for this tutorial is research teams, but this guide is relevant for organizations and other health professionals looking to design visualizations for their patient populations, as they can use this guide as a procedural manual. This start-to-finish guide provides information on how to prepare for design sessions by setting objectives and applying theoretical foundations, planning design sessions to match project goals, conducting design sessions in different formats with varying populations, and carrying out effective analysis. We also address how the methods in this guide can be implemented in the context of resource constraints. This tutorial contains a glossary of relevant terms, pros and cons of variations in the type of design session, an informed consent template, a preparation checklist, a sample design session guide and selection of useful design session prompts, and examples of how surveys can supplement the design process.
参与式设计是一种越来越常见的信息学方法，旨在让目标受众参与健康相关资源的开发。参与式设计对于开发信息可视化特别有帮助，这些可视化旨在通过提高理解、沟通或参与度以及随后的行为改变来改善健康结果。现有关于参与式设计的文献缺乏影响该方法成功的实际细节，并且没有解决新出现的问题，例如增强基于互联网的数据收集的策略。在本教程中，我们的目标是提供有关如何为信息可视化的参与式设计会议做准备、进行会议以及分析会议的实用指南。本教程的主要受众是研究团队，但本指南对于希望为其患者群体设计可视化的组织和其他健康专业人员也很相关，因为他们可以将本指南用作程序手册。这份从头到尾的指南提供了有关如何通过设定目标和应用理论基础来为设计会议做准备、规划设计会议以匹配项目目标、以不同形式与不同人群进行设计会议以及进行有效分析的信息。我们还讨论了如何在资源受限的情况下实施本指南中的方法。本教程包含相关术语词汇表、设计会议类型变化的优缺点、知情同意模板、准备清单、示例设计会议指南和有用的设计会议提示选择，以及调查如何补充设计过程的示例。
