Palkes H S, Marsh J L, Talent B K
Cleft Palate J. 1986 Apr;23(2):137-43.
A prospective study was designed to explore the effects of attitudes of parents who have children affected with craniofacial deformities. The study focuses on the child's craniofacial deformity and its effect upon the child's mental well being. The effect of surgical reconstruction of the deformity upon these parental attitudes was evaluated as well. The parent actively involved in the child's in- and outpatient care was enrolled in the study (N = 24). The evaluation protocol was administered prior to the surgery and postoperatively at 2 weeks, 3 months, and 1 year. For the majority of these parents, having a child with an obvious facial deformity did not make them less accepting of the children or their childrearing responsibilities. These parents expected the affected children to have positive self-esteem. This was the case for the majority of the children. There was no evidence to suggest that the affected children had a negative impact on the family structure. The child's disfigurement was rarely portrayed in parental drawings of the family, and the affected child could not be distinguished from other siblings. In spite of these positive findings, a majority of older children had significant behavioral problems. The parental attitudes were affected variably and transiently by the event of surgical reconstruction. Most attitudes returned to the preoperative baseline within the year of study.
一项前瞻性研究旨在探讨子女患有颅面畸形的父母的态度所产生的影响。该研究聚焦于儿童的颅面畸形及其对儿童心理健康的影响。同时也评估了畸形的手术重建对这些父母态度的影响。积极参与孩子门诊和住院护理的父母被纳入研究（N = 24）。评估方案在手术前以及术后2周、3个月和1年实施。对于大多数这些父母来说，孩子有明显的面部畸形并没有使他们减少对孩子的接纳程度或减轻他们的育儿责任。这些父母期望受影响的孩子有积极的自尊。大多数孩子都是如此。没有证据表明受影响的孩子对家庭结构有负面影响。在父母所画的家庭图中，孩子的容貌缺陷很少被描绘出来，受影响的孩子与其他兄弟姐妹没有区别。尽管有这些积极的发现，但大多数大龄儿童有明显的行为问题。手术重建事件对父母的态度产生了不同程度的短暂影响。在研究的一年内，大多数态度恢复到术前基线水平。
