Faculty of Health and Medicine, Division of Health Research, Furness College, Lancaster University, Lancaster, UK.
Leicestershire Partnership NHS Trust, Mill Lodge, Leicestershire, UK.
Disabil Rehabil. 2022 Nov;44(23):6949-6968. doi: 10.1080/09638288.2021.1981467. Epub 2021 Sep 30.
Parkinson's disease (PD) is a condition which causes significant difficulties in physical, cognitive and psychological domains. It is a progressive condition which people have to live with for a long time; consequently, there is a need to understand what contributes to individual adjustment. This review aimed to answer the question "how do individuals adjust to PD?"
A systematic search of three databases (MEDLINE, CINAHL and PsycINFO) was carried out of papers documenting the adjustment process when living with PD and the findings were synthesised using a meta-ethnographic approach.
After exclusion based on eligibility criteria, 21 articles were included and were assessed for quality prior to analysing the data. Three main themes are proposed relating to the process of adjustment: "maintaining a coherent sense of self", "feeling in control" and "holding a positive mindset". Although many of the studies described challenges of living with PD, the results are dominated by the determination of individuals to self-manage their condition and maintain positive wellbeing.
The results highlight the need to empower patients to self-manage their illness, mitigating the effects of Parkinson's disease and supporting future wellbeing.IMPLICATIONS FOR REHABILITATIONIndividual identity disruption impacts on the self-value and sense of self coherence in individuals living with Parkinson's disease.Healthcare professionals should appreciate the complexity of the adjustment process which is related to the ability to maintain a coherent sense of self, to feel in control and to hold a positive mindset.Healthcare professionals should ensure information and knowledge related to self-management is tailored to an individual's understanding and experience of the disease.
帕金森病（PD）是一种导致身体、认知和心理领域出现严重困难的疾病。它是一种进行性疾病，患者需要长期与之共存；因此，有必要了解是什么因素导致了个体的适应。本综述旨在回答“个体如何适应 PD？”这一问题。
对 MEDLINE、CINAHL 和 PsycINFO 这三个数据库进行了系统检索，以获取记录 PD 患者生活中调整过程和发现的文献，并使用元人种学方法对这些发现进行了综合。
根据入选标准排除后，纳入了 21 篇文章，并在分析数据之前对其进行了质量评估。提出了三个与调整过程相关的主要主题：“保持一致的自我意识”、“感觉掌控”和“保持积极的心态”。尽管许多研究描述了与 PD 共存的挑战，但结果主要是个体自我管理病情和保持积极健康的决心。
结果强调需要赋予患者自我管理疾病的能力，减轻帕金森病的影响，支持未来的健康。
个体身份的破坏会影响到帕金森病患者的自我价值感和自我一致性。
医疗保健专业人员应了解调整过程的复杂性，这与维持一致的自我意识、感觉掌控和保持积极心态的能力有关。
医疗保健专业人员应确保与自我管理相关的信息和知识针对个体对疾病的理解和体验进行个性化定制。
