帕金森病与夫妻关系：一项定性元分析
Parkinson's and the couple relationship: a qualitative meta-synthesis.
作者信息
Glover Louise, Dixon Clare, Kobylecki Christopher, Eccles Fiona J R
机构信息
Lancaster University, Health Innovation One, Sir John Fisher Drive, Lancaster University, Lancaster, UK.
Manchester Centre for Clinical Neurosciences, Northern Care Alliance NHS Foundation Trust, Stott Lane, Salford, UK.
出版信息
Aging Ment Health. 2023 Nov-Dec;27(12):2420-2429. doi: 10.1080/13607863.2023.2227119. Epub 2023 Jun 24.
OBJECTIVE
The aim was to synthesise the current qualitative literature on the impact of Parkinson's on the couple relationship, including individual and dyad studies.
METHODS
Noblit and Hare's meta-ethnography approach was applied; 19 studies were included in the review following a systematic search of four electronic databases. The studies included experiences of 137 People with Parkinson's and 191 partners.
FINDINGS
Analysis produced three themes: (1) Disruption of roles and responsibilities; (2) Challenges to communication and closeness; and (3) Grief, burden, and isolation. The themes are discussed with supporting extracts from the 19 included studies.
CONCLUSION
The findings highlight the challenges that couples experience and the individual and relational resources that support coping. Support should be individually tailored to each couple as the impact on the couple may change in response to individual and contextual factors. This review adds further evidence to the case for relationally focused multidisciplinary team input at all stages of Parkinson's disease.
目的
旨在综合当前关于帕金森病对夫妻关系影响的定性文献，包括个体研究和二元组研究。
方法
采用诺布利特和黑尔的元民族志方法；在对四个电子数据库进行系统检索后，19项研究被纳入综述。这些研究涵盖了137名帕金森病患者和191名伴侣的经历。
结果
分析得出三个主题：（1）角色和责任的扰乱；（2）沟通与亲密关系面临的挑战；（3）悲伤、负担和孤立。结合19项纳入研究的支持性摘录对这些主题进行了讨论。
结论
研究结果突出了夫妻所面临的挑战以及有助于应对的个体和关系资源。由于对夫妻关系的影响可能会因个体和情境因素而改变，因此应针对每对夫妻进行个性化支持。本综述为帕金森病各阶段以关系为重点的多学科团队投入提供了进一步的证据。
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