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丹麦两家临终关怀机构中老年人生命末期的意义体验:一项质性访谈研究

Older Adults' Experience of Meaning at the End of Life in Two Danish Hospices: A Qualitative Interview Study.

作者信息

Viftrup Dorte Toudal, Prinds Christina, Nissen Ricko Damberg, Steenfeldt Vibeke Østergaard, Søndergaard Jens, Hvidt Niels Christian

机构信息

Research Unit of General Practice, Department of Public Health, University of Southern Denmark, Odense, Denmark.

Research Unit of Gynecology and Obstetrics, Department of Clinical Research, University of Southern Denmark, Odense, Denmark.

出版信息

Front Psychol. 2021 Sep 17;12:700285. doi: 10.3389/fpsyg.2021.700285. eCollection 2021.

Abstract

The aim of this study was to explore how older adults (aged > 65) confronted with imminent death express their thoughts and feelings about death and dying and verbalize meaning. Furthermore, the aim was to investigate how health professionals could better address the needs of this patient group to experience meaning at the end of life. The study applied a qualitative method, involving semi-structured interviews with 10 participants at two hospices. The method of analysis was interpretative phenomenological analysis. We found three chronological time-based themes: (1) Approaching Death, (2) The time before dying, and (3) The afterlife. The participants displayed scarce existential vernacular for pursuing meaning with approaching death. They primarily applied understanding and vocabulary from a medical paradigm. The participants' descriptions of how they experienced and pursued meaning in the time before dying were also predominantly characterized by medical vernacular, but these descriptions did include a few existential words and understandings. When expressing thoughts and meaning about the afterlife, participants initiated a two-way dialogue with the interviewer and primarily used existential vernacular. This indicates that the participants' scarce existential vernacular to talk about meaning might be because people are not used to talking with healthcare professionals about meaning or their thoughts and feelings about death. They are mostly "trained" in medical vernacular. We found that participants' use of, respectively, medical or existential vernacular affected how they experienced meaning and hope at the end of life. We encourage healthcare professionals to enter into existential dialogues with people to support and strengthen their experiences of meaning and hope at the end of life.

摘要

本研究的目的是探讨65岁以上的老年人在面对即将到来的死亡时如何表达他们对死亡和临终的想法与感受,并阐述其中的意义。此外,研究目的还包括调查医护人员如何能够更好地满足这一患者群体在生命末期体验意义的需求。该研究采用了定性方法,对两家临终关怀机构的10名参与者进行了半结构化访谈。分析方法为诠释现象学分析。我们发现了三个基于时间顺序的主题:(1)接近死亡,(2)临终前,以及(3)来世。参与者在接近死亡时追求意义的存在主义用语很少。他们主要运用医学范式中的理解和词汇。参与者对在临终前如何体验和追求意义的描述也主要以医学用语为特征,但这些描述确实包含了一些存在主义的词汇和理解。在表达对来世的想法和意义时,参与者与访谈者展开了双向对话,且主要使用存在主义用语。这表明参与者谈论意义时存在主义用语匮乏,可能是因为人们不习惯与医护人员谈论意义或他们对死亡的想法和感受。他们大多接受的是医学用语方面的“训练”。我们发现,参与者分别使用医学或存在主义用语,会影响他们在生命末期对意义和希望的体验。我们鼓励医护人员与人们进行存在主义对话,以支持和强化他们在生命末期对意义和希望的体验。

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