Masoud Bahrami, Imane Bagheri, Naiire Salmani
Nursing and Midwifery Care Research Center, Isfahan University of Medical Sciences, Isfahan, Iran.
College of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran.
BMJ Support Palliat Care. 2023 Jun;13(2):136-142. doi: 10.1136/bmjspcare-2021-003072. Epub 2021 Oct 11.
One of the barriers to the integration of palliative care within the process of patient care and treatment is the lack of awareness of patients about palliative care. In order to develop efficient resources to improve patient awareness, comprehensive information is required to determine the specific aspects of palliative care where a paucity of evidence on patient awareness exists. This review aims to synthesise evidence from previous studies in order to provide a comprehensive information set about the current state of patient awareness of palliative care.
In this systematic literature review, PubMed, Scopus, Web of Science, ProQuest, Magiran, Scientific Information Database(SID) and Islamic Science Citation (ISC) were searched to identify articles published between 2000 and 2021 that considered patients' awareness of palliative care.
Of the 5347 articles found, 22 studies were retained after quality evaluation; three full-text articles were excluded. Nineteen articles are included in this review. More than half of the patients did not have any information about palliative care or hospice care. Some patients accurately defined hospice care and palliative care; other patients had misunderstandings about palliative care. Patients had limited information about pastoral care, social care and bereavement care. Patients' awareness about individuals or centres providing palliative care or hospice care was limited. Video presentation and distribution of information at the community level indicated that this method would be beneficial in increasing the awareness.
The review points to the need for patient education programmes and interventional studies to increase patients' awareness.
姑息治疗融入患者护理和治疗过程的障碍之一是患者对姑息治疗缺乏认识。为了开发有效的资源来提高患者的认识，需要全面的信息来确定在患者认识方面证据不足的姑息治疗的具体方面。本综述旨在综合以往研究的证据，以提供关于患者对姑息治疗认识现状的全面信息集。
在这项系统的文献综述中，检索了PubMed、Scopus、科学引文索引、ProQuest、Magiran、科学信息数据库（SID）和伊斯兰科学引文（ISC），以识别2000年至2021年期间发表的考虑患者对姑息治疗认识的文章。
在找到的5347篇文章中，经过质量评估后保留了22项研究；排除了3篇全文文章。本综述纳入了19篇文章。超过一半的患者没有关于姑息治疗或临终关怀的任何信息。一些患者准确地定义了临终关怀和姑息治疗；其他患者对姑息治疗存在误解。患者对牧师关怀、社会关怀和丧亲关怀的信息有限。患者对提供姑息治疗或临终关怀的个人或中心的认识有限。视频展示和在社区层面分发信息表明，这种方法将有助于提高认识。
该综述指出需要开展患者教育项目和干预性研究，以提高患者的认识。
