Borley Gayle, Hardy Sheila
a Clinical Research Network: East Midlands , Northampton , England.
b Research and Development , Berrywood Hospital , Northampton , England.
Aging Ment Health. 2017 Oct;21(10):1017-1022. doi: 10.1080/13607863.2016.1200535. Epub 2016 Jun 29.
To explore the lived experience of becoming cared for and the impact this has on the identity and sense of self of women with Alzheimer's disease.
Eight women with mild-to-moderate Alzheimer's disease were interviewed in Northamptonshire, England, on two separate occasions about their experiences relating to needing assistance with instrumental activities of daily living (IADL) tasks. Interpretative phenomenological analysis was the approach used to underpin this research.
Changes in the women's identity affected by the increased need for assistance with IADL tasks were expressed in terms of: who I am; unhappy being me; fighting to remain me; I'm not the same, but it doesn't worry me; and acceptance and contentment.
This study offers an alternative perspective to the view that all women with Alzheimer's disease experience becoming cared for as a negative event in their lives. Some factors universally perceived as being a result of Alzheimer's disease may be a normal part of the life course.
探讨接受照料的生活体验及其对患有阿尔茨海默病女性的身份认同和自我认知的影响。
在英国北安普敦郡，对八名患有轻至中度阿尔茨海默病的女性进行了两次单独访谈，了解她们在日常生活工具性活动（IADL）任务中需要帮助的经历。本研究采用解释现象学分析方法。
受IADL任务对帮助需求增加影响，这些女性的身份变化体现在以下方面：我是谁；做自己不开心；努力保持自我；我已不同，但我并不在意；以及接受与满足。
本研究为以下观点提供了另一种视角，即并非所有患有阿尔茨海默病的女性都将接受照料视为生活中的负面事件。一些普遍被认为是阿尔茨海默病所致的因素可能是生命历程中的正常部分。
