Nikoloudi Maria, Thanasko Florjan, Parpa Efi, Kostopoulou Sotiria, Mystakidou Kyriaki
1Pain Relief and Palliative Care Unit, Department of Radiology, Aretaieion Hospital, School of Medicine, National & Kapodistrian University of Athens, Athens, Greece.
J Patient Exp. 2021 Oct 9;8:23743735211049663. doi: 10.1177/23743735211049663. eCollection 2021.
Living with a chronic disease constitutes a biographical reversal characterized by change and loss. The aims of this study are to conceptualize the meaning of breast cancer, of its burden, to explore the patient's needs and expectations while being admitted to a palliative care unit, and to evaluate the fulfillment of those expectations. Two semistructured interviews were conducted, audio taped, transcribed verbatim, and subjected to the qualitative method of Interpretative Phenomenological Analysis. The first interview was conducted at the first visit of the patient to the palliative care unit, and the second after 2 weeks of receiving palliative care services. Qualitative findings indicated that the meaning of cancer can be interpreted as a transition of fading away. The transition began with redefining cancer from "my difficult moment" to "fortunately to its final destination"; struggling with the paradox of "the will to see the development of yourself and your child" and "wishing to die" while being able to "adapt" to "a balanced" day to day leaving and preparing for death. The need for interdisciplinarity is expressed.
患有慢性病意味着人生经历的逆转，其特点是变化和失去。本研究的目的是明确乳腺癌的意义及其负担，探索患者入住姑息治疗病房时的需求和期望，并评估这些期望的达成情况。我们进行了两次半结构化访谈，进行录音、逐字转录，并采用解释现象学分析的定性方法。第一次访谈在患者首次入住姑息治疗病房时进行，第二次访谈在接受姑息治疗服务两周后进行。定性研究结果表明，癌症的意义可以被解释为一种逐渐消逝的转变。这种转变始于将癌症从“我的艰难时刻”重新定义为“幸运地走向最终归宿”；在“希望看到自己和孩子成长”与“希望死去”的矛盾中挣扎，同时能够“适应”到“平静”的日常生活，为死亡做好准备。研究还表达了对跨学科合作的需求。
