Eilander Minke M A, van Mil Marieke M A, Koetsier Leandra W, Seidell Jacob C, Halberstadt Jutka
Department of Health Sciences, Faculty of Science, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.
Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.
J Patient Rep Outcomes. 2021 Oct 14;5(1):106. doi: 10.1186/s41687-021-00381-3.
Childhood obesity can affect physical as well as psychosocial wellbeing. Therefore, childhood obesity care aims to improve all dimensions of health related quality of life (HRQoL). HRQoL can be measured with the generic questionnaire PedsQL4.0 and the weight-specific IWQOL-Kids. In the Netherlands, HRQoL assessment is conducted by the coordinating professional (CP). The aim of this qualitative study was to examine how and when to implement the measurement and discussion of HRQoL using the PedsQL4.0 and IWQOL-Kids within the integrated care for children with obesity in the Netherlands. Semi-structured interviews were conducted with fourteen CPs, in which the following was discussed: a) familiarity and attributions with regard to the assessment of HRQoL; b) wishes and needs with regard to the usage of the questionnaires; c) its practical incorporation.
Interviews revealed that most CPs gained insight into the HRQoL by talking with families. One CP used the PedsQL4.0, the remaining CPs were unfamiliar with the two questionnaires. Even though some barriers, for instance a lack of time, might hinder the implementation of the PedsQL4.0 and IWQOL-Kids, all participants think the usage of either one or both questionnaires would have additional value to the support and care for children with obesity. There was no consensus about the questionnaire of preference.
When the right preconditions are met, HRQoL questionnaires have the potential to support CPs in improving the care for children with obesity, tailored to each individual child.
儿童肥胖会影响身体健康以及心理社会幸福感。因此,儿童肥胖护理旨在改善与健康相关的生活质量(HRQoL)的各个方面。HRQoL可以通过通用问卷儿童生活质量量表4.0(PedsQL4.0)和针对体重的儿童肥胖生活质量问卷(IWQOL-Kids)进行测量。在荷兰,HRQoL评估由协调专业人员(CP)进行。这项定性研究旨在探讨如何以及何时在荷兰针对肥胖儿童的综合护理中使用PedsQL4.0和IWQOL-Kids对HRQoL进行测量和讨论。对14名CP进行了半结构化访谈,讨论了以下内容:a)对HRQoL评估的熟悉程度和归因;b)对问卷使用的愿望和需求;c)其实际纳入情况。
访谈显示,大多数CP通过与家庭交谈了解了HRQoL。一名CP使用了PedsQL4.0,其余CP对这两份问卷不熟悉。尽管存在一些障碍,例如时间不足,可能会阻碍PedsQL4.0和IWQOL-Kids的实施,但所有参与者都认为使用其中一份或两份问卷对肥胖儿童的支持和护理具有额外价值。对于首选问卷没有达成共识。
当满足正确的前提条件时,HRQoL问卷有潜力支持CP改善对肥胖儿童的护理,为每个儿童量身定制。