Faculty of Health Sciences, University of Castilla La Mancha, Talavera de la Reina, Spain.
Faculty of Nursing and Occupational Therapy, University of Extremadura, Cáceres, Spain.
Int J Qual Stud Health Well-being. 2021 Dec;16(1):1967262. doi: 10.1080/17482631.2021.1967262.
PURPOSE: This paper aims at describing the eating experience of people diagnosed with and treated for laryngeal cancer. Going beyond the mere conceptualization of "after-effect" or the quantification of the disease's impact on the basis of standardized questionnaires, we present a qualitative analysis of the narratives of such experiences. METHODS: Ethnographic study. Data is obtained from conversations, semi-structured interviews, participant observation, and written documents. A discourse analysis of the narrative information was conducted, with process coding and using the constant comparative method, inductive content analysis, category analysis, units of meaning associated with each other, and triangulation. RESULTS: The impact of cancer on eating processes is not limited to nutrition, but also affects the social and cultural value of food, which is put into question. The symbolic and social values which accompany the traditional way of eating are modified, which is connected with impaired quality of life. CONCLUSIONS: The impact on the eating process and its relationship with quality-of-life impairment are clear and connect with the importance of eating ways in culture and social organization. Greater attention should be paid to these contexts in clinical practice, which can affect even more than the impact on communicative processes.
目的:本文旨在描述被诊断为喉癌并接受治疗的患者的饮食体验。本研究超越了仅对“后遗症”的概念化,或基于标准化问卷对疾病对患者的影响进行量化,而是对这些体验的叙述进行了定性分析。
方法:本研究采用人种学方法,通过对话、半结构化访谈、参与式观察和书面文件获取数据。对叙事信息进行话语分析,采用过程编码和恒定性比较方法、归纳内容分析、类别分析、相互关联的意义单位以及三角测量法。
结果:癌症对饮食过程的影响不仅限于营养,还会影响食物的社会和文化价值,从而引发质疑。传统饮食方式所伴随的象征意义和社会价值发生了改变,这与生活质量受损有关。
结论:这些结果明确了对饮食过程的影响及其与生活质量受损之间的关系,并与饮食方式在文化和社会组织中的重要性相关。在临床实践中,应该更加关注这些方面,因为它们的影响甚至可能超过对交流过程的影响。
Int J Qual Stud Health Well-being. 2021-12
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