Einarsson Sandra, Laurell Göran, Tiblom Ehrsson Ylva
Department of Food and Nutrition, Umeå University, Umeå, Sweden.
Department of Surgical Sciences, Section of Otorhinolaryngology and Head & Neck Surgery, Uppsala University, Uppsala, Sweden.
Eur J Cancer Care (Engl). 2019 Mar;28(2):e12964. doi: 10.1111/ecc.12964. Epub 2018 Nov 16.
The purpose was to describe how patients with head and neck cancer experience and cope with difficulties related to food and eating up to two years after the termination of treatment. One hundred and thirty-five patients were followed with thematically structured interviews. The patients' responses of nutritional issues were categorised using similarities and differences technique. In the analysis, six categories emerged describing the process of eating and drinking from the end of treatment up to two years after treatment: The constant battle-eating and drinking over time, Food alterations and nutritional support-both pros and cons, Standing aside and not joining in when eating together with others, Finding ways to cope and to make the new a part of everyday life, Relationships and social support-hindrances and facilitators, and Longing for "normality." Results imply that patients struggle with physiological, psychological and social aspects related to food and eating, and use coping mechanisms to facilitate their eating problems. The best practice for rehabilitation and follow-up must be established in order to meet the multifaceted needs of head and neck cancer survivors.
目的是描述头颈癌患者在治疗结束后长达两年的时间里如何体验并应对与食物和进食相关的困难。对135名患者进行了主题结构化访谈。采用异同技术对患者关于营养问题的回答进行分类。分析中出现了六个类别，描述了从治疗结束到治疗后两年的饮食过程：随着时间推移持续的饮食斗争，食物变化和营养支持——利弊皆有，与他人一起进食时置身事外不参与，寻找应对方法并使新情况成为日常生活的一部分，人际关系和社会支持——阻碍因素和促进因素，以及对“正常状态”的渴望。结果表明，患者在与食物和进食相关的生理、心理和社会方面存在困难，并使用应对机制来缓解他们的进食问题。必须建立康复和随访的最佳实践，以满足头颈癌幸存者多方面的需求。
