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“成为自己的方式”:成年中期至晚期被诊断为自闭症的成年人的自传体反思。

'A way to be me': Autobiographical reflections of autistic adults diagnosed in mid-to-late adulthood.

机构信息

Macquarie University, Australia.

Independent autistic advisor.

出版信息

Autism. 2022 Aug;26(6):1395-1408. doi: 10.1177/13623613211050694. Epub 2021 Oct 22.

Abstract

Using oral history methods, we interviewed and recorded 26 autistic adults in Australia about their life history. We wanted to better understand interviewees' self-reflections about their lives. The interviewers were autistic researchers and the interviews were analysed by autistic and non-autistic researchers. All of the adults we interviewed were born before 1975 and formally identified as autistic after age 35 years. This group of people is sometimes referred to as 'late-diagnosed autistic adults'. In general, there is not much research done about autistic adults and even less is known about those diagnosed late in life. In this article, we explore what these adults said about their sense of self and how that changed over time. These autistic adults told us about many negative experiences, including trauma, which had shaped how they think about themselves. For most, autism diagnosis had a very positive impact on their sense of self, allowing them to understand more about their own past and to feel good about their autistic identity. Previously some researchers have said that autistic people have a limited or impaired sense of self. Instead, our results show some autistic people can actually reflect deeply on their lives and their changing sense of self-identity over time.

摘要

我们采用口述历史的方法,对 26 位澳大利亚自闭症成年人进行了访谈并记录了他们的人生经历。我们希望更好地理解受访者对自己生活的反思。访谈者是自闭症研究人员,访谈由自闭症和非自闭症研究人员进行分析。我们采访的所有成年人都出生于 1975 年以前,并且在 35 岁以后被正式确认为自闭症患者。这群人有时被称为“晚发性自闭症成年人”。一般来说,针对自闭症成年人的研究并不多,对于那些在生命晚期被诊断出的人,了解就更少了。在本文中,我们探讨了这些成年人对自我意识的看法,以及这种意识随时间的变化。这些自闭症成年人告诉我们他们有许多负面经历,包括创伤,这些经历塑造了他们对自己的看法。对大多数人来说,自闭症的诊断对他们的自我意识产生了非常积极的影响,使他们能够更多地了解自己的过去,并对自己的自闭症身份感到满意。之前一些研究人员曾表示,自闭症患者的自我意识有限或受损。相反,我们的研究结果表明,一些自闭症患者实际上可以深入反思自己的生活以及随着时间的推移而不断变化的自我认同感。

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