Broken Hill University Department of Rural Health, University of Sydney, PO BOX 457, Broken Hill, NSW 2880, Australia
Far West Local Health District, Broken Hill, NSW 2880, Australia
Rural Remote Health. 2021 Oct;21(4):5947. doi: 10.22605/RRH5947. Epub 2021 Oct 23.
There is an inconsistent provision of palliative and end-of-life (palliative) care across Australia, particularly in regional, rural and remote areas. Systematic solutions can help to address identified gaps and improve access to and quality of care and support for patients, their families and carers at the end of life. The Far West New South Wales (NSW) Palliative and End of Life Model of Care is a systematic solution for a rural and remote palliative approach to care. The model enables a consistent and contextually adaptable, patient-focused palliative approach to care so that everyone receives the care they need from appropriately skilled and informed clinicians, in a timely manner, and as close to home as possible.
A narrative report used literature and internal documents as well as the perspective and experience of key informants involved in establishing the Far West NSW Palliative and End of Life Model of Care. This narrative report aims to describe the design, development and function of the model, and to identify the essential elements to implement or maintain the model elsewhere.
The model was developed by the Specialist Palliative Care Service in the remotely situated Far West Local Health District of NSW. The Far West NSW Palliative and End of Life Model of Care was designed to guide a palliative approach to care in the last year of life, through death and into bereavement, regardless of age, diagnosis, culture, location or provider. The model functionally provides the scaffolding for locally and contextually relevant components of a quality palliative approach to care in consideration of a person's wishes. There are three essential elements to the development, maintenance and further implementation of the model and a palliative approach elsewhere.
Until recently, the model relied on paper-based documents and resources; it is now available online. It has the potential to enable a consistent, yet contextually adaptable, patient-focused palliative approach to care.
澳大利亚各地的姑息治疗和临终关怀(姑息治疗)服务提供情况不一致,特别是在区域、农村和偏远地区。系统的解决方案可以帮助解决已确定的差距,并改善患者、其家属和照顾者在生命末期获得护理和支持的机会和质量。新南威尔士州远西部(新南威尔士州)姑息治疗和临终关怀模式是一种针对农村和偏远地区姑息治疗方法的系统解决方案。该模式能够实现一致且具有上下文适应性、以患者为中心的姑息治疗方法,以便每个人都能及时从具有适当技能和知识的临床医生那里获得所需的护理,并且尽可能在离家近的地方获得护理。
使用文献和内部文件以及参与建立新南威尔士州远西部姑息治疗和临终关怀模式的主要利益攸关方的观点和经验,撰写了一份叙述性报告。本叙述性报告旨在描述模型的设计、开发和功能,并确定在其他地方实施或维持该模型的基本要素。
该模型由新南威尔士州偏远的远西部地方卫生区的专科姑息治疗服务部门开发。新南威尔士州远西部姑息治疗和临终关怀模式旨在指导生命的最后一年、死亡和丧亲期间的姑息治疗方法,无论年龄、诊断、文化、地点或提供者如何。该模式从功能上为考虑到一个人的意愿,提供了一个优质姑息治疗方法的本地和上下文相关组件的框架。该模型的开发、维护和进一步实施以及其他地方的姑息治疗方法有三个基本要素。
直到最近,该模型还依赖于纸质文件和资源;现在它已经可以在线使用。它有可能实现一致但具有上下文适应性、以患者为中心的姑息治疗方法。