在卫生和社会保健综合模式下，为绝症患者家属提供姑息治疗的可及性和稳定性。
Availability and stability of palliative care for family members of terminally ill patients in an integrated model of health and social care.
机构信息
Department of Geriatrics, The Second Hospital, Cheeloo College of Medicine, Shandong University, Jinan, 250033, China.
Department of Cardiology, The Second Hospital, Cheeloo College of Medicine, Shandong University, Jinan, 250033, China.
出版信息
BMC Palliat Care. 2024 Jun 5;23(1):140. doi: 10.1186/s12904-024-01475-7.
BACKGROUND
Palliative care and the integration of health and social care have gradually become the key direction of development to address the aging of the population and the growing burden of multimorbidity at the end of life in the elderly.
AIMS
To explore the benefits/effectiveness of the availability and stability of palliative care for family members of terminally ill patients in an integrated institution for health and social care.
METHODS
This prospective observational study was conducted at an integrated institution for health and social care. 230 patients with terminal illness who received palliative care and their family members were included. Questionnaires and scales were administered to the family members of patients during the palliative care process, including quality-of-life (SF-8), family burden (FBSD, CBI), anxiety (HAMA), and distress (DT). We used paired t-tests and correlation analyses to analyze the data pertaining to our research questions.
RESULTS
In the integrated institution for health and social care, palliative care can effectively improve quality of life, reduce the family's burden and relieve psychological impact for family members of terminally ill patients. Palliative care was an independent influencing factor on the quality of life, family burden, and psychosocial status. Independently of patient-related and family-related factors, the results are stable and widely applicable.
CONCLUSION
The findings underline the availability and stability of palliative care and the popularization of an integrated service model of health and social care for elder adults.
背景
姑息治疗以及医疗与社会保健的整合已逐渐成为解决人口老龄化和老年人多病共存负担日益加重的关键发展方向。
目的
探索在健康和社会关怀综合机构中，为临终患者的家属提供姑息治疗的可及性和稳定性的益处/有效性。
方法
这是一项在健康和社会关怀综合机构中进行的前瞻性观察性研究。共纳入 230 名接受姑息治疗的终末期疾病患者及其家属。在姑息治疗过程中，通过问卷调查和量表评估患者家属的生活质量（SF-8）、家庭负担（FBSD、CBI）、焦虑（HAMA）和痛苦（DT）。我们使用配对 t 检验和相关分析来分析与我们的研究问题相关的数据。
结果
在健康和社会关怀综合机构中，姑息治疗可以有效提高终末期患者家属的生活质量，减轻家庭负担，缓解心理压力。姑息治疗是影响患者生活质量、家庭负担和心理社会状况的独立因素。独立于患者相关和家庭相关因素，结果稳定且具有广泛适用性。
结论
这些发现强调了姑息治疗的可及性和稳定性，以及健康和社会关怀综合服务模式在老年人群中的普及性。
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