Desroches Melissa L, Fisher Kathleen, Ailey Sarah, Stych Judith
University of Massachusetts Dartmouth, North Dartmouth, MA, USA.
Drexel University, Philadelphia, PA, USA.
Glob Qual Nurs Res. 2021 Oct 28;8:23333936211051705. doi: 10.1177/23333936211051705. eCollection 2021 Jan-Dec.
People with developmental disabilities (DD) are devastatingly impacted by COVID-19, yet no studies have explored the experiences of developmental disability nurses during the pandemic. In April 2020, as part of a multiple method study, we used manifest content analysis to evaluate nurses' 287 open-ended responses to our online survey question: "What is the of being a developmental disability nurse while encountering challenges to meeting basic care needs during the early COVID-19 pandemic?" We identified four themes: living with fear and stress, helping others to understand and cope, navigating a changing landscape, and being left out. Findings reinforce the need for accessible health information for people with developmental disability, guidelines relevant to developmental disability nursing settings, emotional support for developmental disability nurses, and education of health care professionals about the contribution of the developmental disability nurse in supporting the holistic well-being of people with DD.
发育障碍（DD）患者受到新冠疫情的严重影响，但尚无研究探讨疫情期间发育障碍护士的经历。2020年4月，作为一项多方法研究的一部分，我们采用显性内容分析法，对护士针对我们在线调查问题的287条开放式回答进行评估，该问题为：“在新冠疫情早期，当满足基本护理需求面临挑战时，作为一名发育障碍护士意味着什么？”我们确定了四个主题：生活在恐惧和压力之中、帮助他人理解和应对、应对不断变化的局面以及被边缘化。研究结果强化了为发育障碍患者提供可获取的健康信息的必要性、与发育障碍护理环境相关的指南、对发育障碍护士的情感支持，以及对医疗保健专业人员进行关于发育障碍护士在支持发育障碍患者整体福祉方面贡献的教育。
