Tuğral A, Eliiyi U, Özdemir K, Ergin G, Bakar Y
Department of Physiotherapy and Rehabilitation, Faculty of Health Sciences, Izmir Bakırçay University, Izmir, Turkey.
Faculty of Economics and Administrative Sciences, Department of Business, Izmir Bakırçay University, Izmir, Turkey.
Lymphology. 2021;54(2):68-77.
Instagram® is one of the most active social media platforms with over a billion users worldwide. Since the importance of education on lymphedema has been established due to the chronic nature of the disease, seeking knowledge attracts much attention not only clinically but also on social platforms such as Instagram ®. Our aim was to examine content by analyzing posts tagged with hashtags on Instagram ® related to lymphedema. Nine predefined hashtags related to lymphedema were used to search posts uploaded to Instagram® via the Apify tool. Retrieved public posts were classified and analyzed by four researchers for their content and post-type. We found that the vast majority of sharing on Instagram® in the context of lymphedema and its related aspects have relatively low scores for both relevancy and accuracy with a 77% irrelevancy rate. The best posts were those determined to be educational, which were found 57% relevant and correct. Medical professionals should consider that disseminating true guidance and therapy carries importance for patients with lymphedema and treatment success. The ability for patients to reach knowledge via social media might also be an important aspect in reliving suffering due to lymphedema. However, our results demonstrate that Instagram® might not be a good platform for patients to discover reliable information about lymphedema.
照片墙（Instagram®）是最活跃的社交媒体平台之一，全球用户超过10亿。由于淋巴水肿具有慢性病程，淋巴水肿教育的重要性已得到确立，因此，寻求相关知识不仅在临床上备受关注，在照片墙（Instagram®）等社交平台上也备受关注。我们的目的是通过分析照片墙（Instagram®）上带有与淋巴水肿相关主题标签的帖子来研究相关内容。我们使用九个与淋巴水肿相关的预定义主题标签，通过Apify工具搜索上传到照片墙（Instagram®）的帖子。四位研究人员对检索到的公开帖子的内容和帖子类型进行了分类和分析。我们发现，在淋巴水肿及其相关方面，照片墙（Instagram®）上绝大多数分享内容的相关性和准确性得分相对较低，不相关率达77%。最佳帖子是那些被判定具有教育意义的帖子，其相关性和正确性达57%。医学专业人员应认识到，传播正确的指导和治疗方法对淋巴水肿患者及治疗成功具有重要意义。患者通过社交媒体获取知识的能力，也可能是缓解淋巴水肿痛苦的一个重要方面。然而，我们的研究结果表明，照片墙（Instagram®）可能不是患者获取有关淋巴水肿可靠信息的良好平台。
