Vutcovici Maria, Sewitch Maida, Kachan Natasha, Stone Marlene, Morin Isabelle, Bouchard Shelley, Heatherington Joan, Devitt Katharine S, Nguyen Geoffrey C, Bitton Alain
Division of Gastroenterology and Hepatology, McGill University Health Center, Montreal, Canada.
McGill University, Montreal, Canada.
J Can Assoc Gastroenterol. 2021 Jan 6;4(5):229-233. doi: 10.1093/jcag/gwaa044. eCollection 2021 Oct.
As beneficiaries of health service improvement initiatives, patients should have their perspectives of and gaps in care elicited to inform and guide the development of quality indicators to assess health care services. The purpose of this study was to identify patient perspectives amenable for conversion into measurable inflammatory bowel disease (IBD) care quality indicators.
Crohn's and Colitis Canada's Promoting Access and Care through Centres of Excellence (PACE) program organized four patient focus groups in three Canadian provinces in 2016 to capture the perspective of patients on IBD care services. The RQDA package in R was used for transcript analysis, theme identification and for building a theme hierarchy based on the number of citations. The main themes were converted into patient-derived quality indicators.
Several perceived unmet needs were elicited from participants that could be converted into measurable quality indicators. These unmet needs addressed the need for information, access to multidisciplinary services and specialized care, and access to psychological support. Patient unmet needs informed the selection of nine quality indicators that were included in the final list of PACE indicators to assess IBD care services across Canada.
Our study provides a detailed description of patient perspectives on IBD care services that were an integral part of the development of measurable indicators of the quality of care in the context of a universal health care system.
作为医疗服务改善举措的受益者，患者应表达其对医疗服务的看法及其中存在的差距，以为评估医疗服务的质量指标制定提供信息和指导。本研究的目的是确定适合转化为可衡量的炎症性肠病（IBD）护理质量指标的患者观点。
加拿大克罗恩病和结肠炎协会的卓越中心促进就医与护理（PACE）项目于2016年在加拿大三个省份组织了四次患者焦点小组讨论，以了解患者对IBD护理服务的看法。使用R语言中的RQDA软件包进行转录分析、主题识别，并根据引用次数构建主题层次结构。主要主题被转化为患者衍生的质量指标。
参与者提出了一些未满足的需求，这些需求可转化为可衡量的质量指标。这些未满足的需求涉及对信息的需求、获得多学科服务和专科护理的机会以及获得心理支持的机会。患者未满足的需求为九个质量指标的选择提供了依据，这些指标被纳入PACE指标的最终列表中，以评估加拿大各地的IBD护理服务。
我们的研究详细描述了患者对IBD护理服务的看法，这些看法是在全民医疗保健系统背景下制定可衡量的护理质量指标的一个组成部分。
