Centre of Excellence for Rehabilitation Medicine, University Medical Centre Utrecht, UMC Utrecht Brain Centre, Utrecht, the Netherlands.
Department of Rehabilitation Medicine, University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands.
Disabil Rehabil. 2022 Dec;44(24):7484-7490. doi: 10.1080/09638288.2021.1998663. Epub 2021 Nov 6.
Self-regulation refers to self-management and self-control, with or without disability. Outcomes of rehabilitation with respect to self-regulation are unclear. This study aims to identify elements of self-regulation that former patients consider important in the context of medical rehabilitation.
Qualitative exploration based on focus group discussions (FGDs). Transcripts were analysed using thematic analysis as well as open coding. Forty individuals participated in seven diagnosis-related FGDs.
Six subthemes were raised in the FGDs which could be merged into three main themes. Two main themes are conditional for regaining self-regulation: 1) having insight into one's condition and abilities (i.e., insight into impairments. consequences of impairments. abilities); 2) to know how to cope with the consequences of the condition (be able to communicate limitations; have to trust in body and functioning). The subject of the last theme 3) is how to apply self-regulation in one's own life (to make use of abilities and optimize functioning).
Three main themes of self-regulation in the context of medical rehabilitation were identified by former patients, partly relating to the ability to self-regulate and partly to the execution of self-regulation. This knowledge can be used to define specific rehabilitation goals and further develop rehabilitation outcome measurement.IMPLICATIONS FOR REHABILITATIONAwareness of the fundamental subthemes of self-regulation in rehabilitation will positively contribute to theory building and improve clinical practice (e.g., goal setting).Paying explicit attention to the six subthemes as standard elements of rehabilitation will help to provide a comprehensive view concerning self-regulation.The conceptual model of self-regulation, based on patient perspectives, can contribute to the measurement of rehabilitation outcomes.
自我调节是指自我管理和自我控制，有无残疾均可。康复治疗对自我调节的结果尚不清楚。本研究旨在确定前患者认为在医学康复背景下重要的自我调节要素。
基于焦点小组讨论（FGD）的定性探索。使用主题分析和开放式编码对转录本进行分析。40 人参加了 7 个与诊断相关的 FGD。
FGD 中提出了 6 个副主题，可以合并为 3 个主要主题。两个主要主题是恢复自我调节的条件：1）对自身状况和能力有洞察力（即对损伤的洞察力、损伤的后果、能力）；2）知道如何应对状况的后果（能够沟通限制、信任身体和功能）。最后一个主题 3）的主题是如何将自我调节应用于自己的生活中（利用能力和优化功能）。
通过前患者确定了医学康复背景下自我调节的三个主要主题，部分与自我调节能力有关，部分与自我调节的执行有关。这些知识可用于定义具体的康复目标，并进一步开发康复结果测量。
康复中自我调节基本副主题的意识将积极促进理论构建并改善临床实践（例如，设定目标）。明确关注六个副主题作为康复的标准要素将有助于全面了解自我调节。基于患者观点的自我调节概念模型可以为康复结果的测量做出贡献。
