Department of Health Sciences, FH Campus Wien - University of Applied Sciences, Vienna, Austria.
Faculty of Health, Social Care and Education, Kingston University and St George's, University of London, London, UK.
Disabil Rehabil. 2020 Dec;42(25):3628-3637. doi: 10.1080/09638288.2019.1604821. Epub 2019 Apr 25.
The inclusion of rehabilitation clients with communication and/or cognitive impairments after stroke in person-centred goal-setting is challenging. Moreover, this group of clients has largely been excluded from studies, resulting in a lack of knowledge about how to optimize their participation. The aim of this study was to explore strategies that are used in rehabilitation to involve stroke survivors with communication and/or cognitive impairment in person-centred goal-setting. Eleven stroke rehabilitation professionals participated in semi-structured in-depth interviews. Thematic analysis was undertaken to describe their practice-based strategies. Twenty-one aspects of person-centred goal setting were described from the data and grouped according to five themes: flexibility, trusting relationships, enabling empowerment, techniques for one-to-one interaction, and involving relatives. Participants did not distinguish between approaches for clients with either communication or cognitive impairments but drew from a repertoire of strategies to best meet the individual person's needs. Participants' practice combined the conscientious and deliberate application of various strategies with a mind-set that it is possible to involve clients with communication and cognitive impairments in person-centred goal-setting. These findings offer insights into inclusive person-centred goal-setting practices, based on accounts from a group of experienced rehabilitation clinicians.Implications for rehabilitationThe goal-setting process is not rigid, but an evolving and individual practice, and should be individually adapted to the (changing) needs of the client during the continuum of rehabilitation.In practice, strategies tend not to be distinguished into those supporting communication and those supporting cognitive difficulty; but strategies are applied flexibly and in combination, to meet the needs of the individual client.It is important to provide specific and sufficient support as well as enough time to enable participation for clients with communication and/or cognitive impairment in goal-setting.Leaving one's own values, preferences, attitudes and notions of "normality" behind can help rehabilitation practitioners to get to know the client, be sensitive towards all signs the client offers during a conversation, and remain open to differing and alternative viewpoints when considering goals.
将患有中风后沟通和/或认知障碍的康复患者纳入以患者为中心的目标设定具有挑战性。此外,这组患者在很大程度上被排除在研究之外,导致人们对如何优化他们的参与知之甚少。本研究旨在探讨在康复中使用的策略,以让患有沟通和/或认知障碍的中风幸存者参与以患者为中心的目标设定。11 名中风康复专业人员参加了半结构化深入访谈。采用主题分析来描述他们的实践策略。从数据中描述了 21 个以患者为中心的目标设定方面,并根据五个主题进行分组:灵活性、信任关系、赋能授权、一对一互动技巧和涉及亲属。参与者没有区分有沟通或认知障碍的患者的方法,而是从一系列策略中汲取最佳满足个人需求的方法。参与者的实践将各种策略的自觉和精心应用与一种思维模式相结合,即有可能让有沟通和认知障碍的患者参与以患者为中心的目标设定。这些发现基于一组经验丰富的康复临床医生的描述,提供了有关包容性以患者为中心的目标设定实践的见解。
康复的意义
目标设定过程不是僵化的,而是一个不断发展和个体化的过程,应该根据客户在康复连续体中的(变化)需求进行个体化调整。
在实践中,策略往往不会区分支持沟通的策略和支持认知困难的策略;而是灵活地应用和组合策略,以满足个别客户的需求。
为了使有沟通和/或认知障碍的客户能够参与目标设定,为他们提供具体和足够的支持以及足够的时间非常重要。
放下自己的价值观、偏好、态度和“正常”观念,可以帮助康复从业者了解客户,对客户在对话中提供的所有迹象敏感,并在考虑目标时对不同和替代观点保持开放。