Division of Human Genetics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.
Genetic Counseling Graduate Program, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA.
J Genet Couns. 2022 Jun;31(3):641-652. doi: 10.1002/jgc4.1531. Epub 2021 Nov 9.
Since 2010, Ohio legislators have passed more than 15 legislative changes related to abortion and abortion providers, and nine procedural abortion clinics have closed. We investigated reproductive genetic counselors' perceptions, attitudes and self-reported practices regarding Ohio's current and proposed abortion regulations. We conducted five focus groups and two telephone interviews in 2019-2020, with a total of 19 reproductive genetic counselors. Participants discussed difficulties keeping current on abortion legislation and clinics' and hospitals' policies, resulting in anticipatory anxiety and leading to additional work to discuss the laws with patients. Participants articulated that practices of reproductive genetic counseling-and patient advocacy-are impeded by the legislation. Genetic counselors perceive negative impacts on patients' autonomy, particularly reflective of healthcare disparities of marginalized groups, which may contribute to frustration and anger. Ultimately, the mental and emotional burden on genetic counselors created by abortion legislation contributes to compassion fatigue and burnout. Our findings show that Ohio's abortion regulations negatively impact reproductive genetic counselors and their relationships with their patients. Repealing existing abortion regulations and preventing future restrictive legislation may ameliorate the negative effects of regulations on reproductive genetic counselors and their patients. In the event that these laws remain, innovative communication tools and proactive professional society advocacy are potential means to mitigate the negative impact on reproductive genetic counselors.
自 2010 年以来,俄亥俄州立法者通过了 15 项以上与堕胎和堕胎提供者相关的立法变更,并且有 9 家程序性堕胎诊所关闭。我们调查了生殖遗传咨询师对俄亥俄州当前和拟议堕胎法规的看法、态度和自我报告的实践。我们在 2019-2020 年进行了 5 次焦点小组讨论和 2 次电话访谈,共有 19 名生殖遗传咨询师参加。参与者讨论了难以跟上堕胎立法和诊所及医院政策的变化,导致他们产生了预期性焦虑,并导致他们需要花更多的时间与患者讨论这些法律。参与者认为,生殖遗传咨询和患者倡导的实践受到了立法的阻碍。遗传咨询师认为立法对患者自主权产生了负面影响,尤其是反映了边缘化群体的医疗保健差距,这可能导致他们感到沮丧和愤怒。最终,堕胎立法给遗传咨询师带来的心理和情绪负担导致了同情心疲劳和倦怠。我们的研究结果表明,俄亥俄州的堕胎法规对生殖遗传咨询师及其与患者的关系产生了负面影响。废除现有的堕胎法规并防止未来的限制性立法可能会减轻这些法规对生殖遗传咨询师及其患者的负面影响。如果这些法律仍然存在,创新的沟通工具和积极主动的专业协会倡导可能是减轻生殖遗传咨询师负面影响的潜在手段。