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Communicating With Families of Children With Severe Neurological Impairment.

作者信息

Bogetz Jori F, Boss Renee D, Lemmon Monica E

机构信息

Division of Pediatric Bioethics and Palliative Care, Department of Pediatrics (J.F.B.), University of Washington School of Medicine; Seattle Children's Research Institute, Center for Clinical and Translational Research, Seattle, Washington, USA; Department of Pediatrics (R.D.B.), Johns Hopkins University School of Medicine, Berman Institute of Bioethics, Baltimore, Maryland, USA; Division of Neurology, Department of Pediatrics and Population Health Sciences (M.E.L.), Duke University School of Medicine; Duke University Medical Center 3936, Durham, North Carolina, USA.

Division of Pediatric Bioethics and Palliative Care, Department of Pediatrics (J.F.B.), University of Washington School of Medicine; Seattle Children's Research Institute, Center for Clinical and Translational Research, Seattle, Washington, USA; Department of Pediatrics (R.D.B.), Johns Hopkins University School of Medicine, Berman Institute of Bioethics, Baltimore, Maryland, USA; Division of Neurology, Department of Pediatrics and Population Health Sciences (M.E.L.), Duke University School of Medicine; Duke University Medical Center 3936, Durham, North Carolina, USA.

出版信息

J Pain Symptom Manage. 2022 Feb;63(2):e264-e266. doi: 10.1016/j.jpainsymman.2021.10.012. Epub 2021 Nov 10.

DOI:10.1016/j.jpainsymman.2021.10.012
PMID:34767920
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9624372/
Abstract
摘要

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Severe Neurological Impairment: A delphi consensus-based definition.严重神经功能障碍：基于德尔菲共识的定义。
Eur J Paediatr Neurol. 2020 Nov;29:81-86. doi: 10.1016/j.ejpn.2020.09.001. Epub 2020 Sep 11.
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Assessment of Bereaved Caregiver Experiences of Advance Care Planning for Children With Medical Complexity.评估有医疗复杂性儿童的临终关怀照顾者对预先医疗指示的体验。
JAMA Netw Open. 2020 Jul 1;3(7):e2010337. doi: 10.1001/jamanetworkopen.2020.10337.
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Neurologic Outcome After Prematurity: Perspectives of Parents and Clinicians.早产儿的神经发育结局：父母和临床医生的观点。
Pediatrics. 2019 Jul;144(1). doi: 10.1542/peds.2018-3819.
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Estimating Neurologic Prognosis in Children: High Stakes, Poor Data.评估儿童神经学预后：风险高，数据差。
JAMA Neurol. 2019 Aug 1;76(8):879-880. doi: 10.1001/jamaneurol.2019.1157.
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Changes Over Time in Good-Parent Beliefs Among Parents of Children With Serious Illness: A Two-Year Cohort Study.时间推移中严重疾病患儿父母良好父母信念的变化：一项为期两年的队列研究。
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