Lund University, Skåne University Hospital, Department of Clinical Sciences Lund, Orthopedics, Lund, Sweden.
National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA, USA.
J Pediatr Rehabil Med. 2021;14(4):571-582. doi: 10.3233/PRM-190661.
To investigate the: (1) percent of children with spina bifida (SB) complaining of pain, (2) frequency, duration, and cause of pain by sex, level of lesion type of SB, and ambulation status, (3) body sites reported to hurt, by variables in objective 2, and (4) associations between physical and mental/emotional health between caregiver and child.
Cross-sectional study of 101 caregivers of children (3 to 6 years old) with SB. Survey data and information from medical records were included. Pearson chi-square, one-way ANOVA, Fisher's exact test, logistic regressions, and bivariate correlations were used.
Seventy percent reported that their child complained of pain, which did not significantly differ by sex, level of lesion, type of SB, or ambulation status. Most (86%) were reported to have experienced pain for less than 24 hours. The most frequently reported pain site was the head, followed by the abdomen and the lower body. Number of pain sites was moderately correlated with frequency of pain complaints. Correlations between how caregivers reported their own physical/mental/emotional health and how they rated that of their children ranged from weak (r = 0.22) to moderate (r = 0.55).
Almost seven of ten children reportedly complained of pain ranging from at least once a month to everyday. Pain needs to be routinely assessed and treated in this population.
调查：（1）患有脊髓脊膜膨出症（SB）的儿童抱怨疼痛的百分比，（2）按性别、病变类型和 SB 类型、运动状态划分的疼痛频率、持续时间和原因，（3）根据目标 2 中的变量报告的疼痛身体部位，以及（4）照顾者和儿童之间身体和心理/情绪健康之间的关联。
对 101 名患有 SB 的儿童（3 至 6 岁）的照顾者进行了横断面研究。包括调查数据和病历信息。使用 Pearson 卡方检验、单因素方差分析、Fisher 确切检验、逻辑回归和双变量相关分析。
70%的人报告说他们的孩子抱怨疼痛，但性别、病变程度、SB 类型或运动状态均无显著差异。大多数（86%）人报告疼痛持续时间不到 24 小时。报告最多的疼痛部位是头部，其次是腹部和下半身。疼痛部位的数量与疼痛抱怨的频率中度相关。照顾者报告自己的身体/心理/情绪健康状况及其对子女健康状况的评价之间的相关性从弱（r=0.22）到中度（r=0.55）不等。
近十分之七的儿童据称每月至少抱怨一次疼痛，甚至每天都有疼痛。在该人群中，疼痛需要常规评估和治疗。
