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[脊柱裂诊断与治疗专家共识]

[Expert consensus on diagnosis and treatment of spina bifida].

机构信息

.

出版信息

Zhongguo Xiu Fu Chong Jian Wai Ke Za Zhi. 2021 Nov 15;35(11):1361-1367. doi: 10.7507/1002-1892.202105099.

DOI:10.7507/1002-1892.202105099
PMID:34779159
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8586762/
Abstract

Spina bifida and tethered spinal cord are congenital diseases that can lead to severe disability. At present, most doctors in relevant specialties in China still have insufficient understanding of spina bifida, resulting in high incidence and aggravation of its complications. To provide guidance for the diagnosis and treatment of spina bifida and tethered spinal cord in China, experts from neurosurgery, urology, orthopedics, spine surgery, and rehabilitation departments who have experiences in the diagnosis and treatment of spina bifida discussed and summarized their experiences, and referred to the relevant literature on the diagnosis and treatment of spina bifida at home and abroad. Expert consensus was formed in the following aspects: concept, classification, and pathological changes of spina bifida; diagnosis; treatment process and operation timing; principles and methods of treatment; rehabilitation; and follow up. This expert consensus can provide reference for relevant care providers of spina bifida in China.

摘要

脊柱裂和脊髓拴系综合征是可导致严重残疾的先天性疾病。目前,我国相关专科的多数医生对脊柱裂的认识仍不足,导致其发病率高且并发症加重。为给我国脊柱裂和脊髓拴系综合征的诊断与治疗提供指导,来自神经外科、泌尿外科、骨科、脊柱外科及康复科且有脊柱裂诊治经验的专家们讨论并总结了经验,同时参考了国内外脊柱裂诊治的相关文献。在以下方面形成了专家共识:脊柱裂的概念、分类及病理改变;诊断;治疗流程及手术时机;治疗原则与方法;康复;以及随访。本专家共识可为我国脊柱裂相关医护人员提供参考。

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1
[Expert consensus on diagnosis and treatment of spina bifida].[脊柱裂诊断与治疗专家共识]
Zhongguo Xiu Fu Chong Jian Wai Ke Za Zhi. 2021 Nov 15;35(11):1361-1367. doi: 10.7507/1002-1892.202105099.
2
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本文引用的文献

1
Improved Ilizarov method for management of deformity and ulceration on foot and ankle of spina bifida.改良伊里扎洛夫方法治疗脊柱裂足踝部畸形与溃疡
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3
Guidelines and scientifically-based spina bifida care: Guidance across the lifespan in a global health context.脊灰相关先天性脊柱裂的临床照护指南:在全球健康背景下贯穿全生命周期的科学指导
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5
Self-management and independence guidelines for the care of people with spina bifida.脊髓裂患者护理的自我管理和独立指南。
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Bowel function and care: Guidelines for the care of people with spina bifida.肠道功能与护理:脊髓裂患者护理指南。
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Urologic guidelines for the care and management of people with spina bifida.脊髓裂患者护理和管理的泌尿科指南。
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Surgical Management of Complex Spinal Cord Lipomas : A New Perspective.复杂脊髓脂肪瘤的外科治疗:一种新视角
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Zhongguo Xiu Fu Chong Jian Wai Ke Za Zhi. 2019 Nov 15;33(11):1333-1339. doi: 10.7507/1002-1892.201907108.
10
Surgical management of complex spinal cord lipomas: how, why, and when to operate. A review.复杂脊髓脂肪瘤的外科治疗:如何、为何以及何时进行手术。综述
J Neurosurg Pediatr. 2019 May 1;23(5):537-556. doi: 10.3171/2019.2.PEDS18390.