Stransky Olivia, Hunt Nicole, Richards John Steuart, Talabi Mehret Birru
O. Stransky, MPH, M. Birru Talabi, MD, PhD, Center for Women's Health Research and Innovation (CWHRI), and Division of Rheumatology and Clinical Immunology, Department of Medicine, University of Pittsburgh.
N. Hunt, MD, Division of Rheumatology and Clinical Immunology, Department of Medicine, University of Pittsburgh.
J Rheumatol. 2022 Mar;49(3):251-255. doi: 10.3899/jrheum.210785. Epub 2021 Nov 15.
To explore family planning, parenting, and sexual and reproductive health (SRH) care needs and experiences of men with rheumatic diseases.
Men aged 18-45 years who were diagnosed with at least 1 rheumatic disease and used at least 1 antirheumatic drug were recruited from rheumatology clinics. Research coordinators engaged participants in semistructured phone interviews. A codebook was developed based on the interview transcripts and used to conduct an inductive thematic analysis.
Participants ranged in age from 22 to 44 years (n = 20). Most were heterosexual and had at least 1 child. The most common disease diagnoses were spondyloarthritis, systemic lupus erythematosus, and rheumatoid arthritis. Four themes emerged from the interviews: (1) Men had family planning concerns, particularly related to the heritability of their diseases, their fertility, and potential effects of their medications on their offspring's health. (2) Men felt that fatigue, disability, and/or pain from their diseases either impaired or would impair their abilities to parent. (3) Men often did not discuss sexual dysfunction with their rheumatologists, even when they believed that it arose from their diseases or antirheumatic drugs. (4) Men rarely discussed any family planning, parenting, or SRH issues with their rheumatologists; gender discordance with rheumatologists did not affect men's comfort in discussing these issues.
Men expressed concerns related to family planning, parenting, and SRH, which they rarely discussed with their rheumatologists. Our study suggests that some men's SRH information needs are incompletely addressed in the rheumatology clinical setting.
探讨患有风湿性疾病男性的计划生育、为人父母及性与生殖健康（SRH）护理需求和经历。
从风湿病诊所招募年龄在18至45岁之间、被诊断患有至少一种风湿性疾病且使用过至少一种抗风湿药物的男性。研究协调员对参与者进行半结构化电话访谈。根据访谈记录编制了一本编码手册，并用于进行归纳主题分析。
参与者年龄在22至44岁之间（n = 20）。大多数为异性恋且至少有一个孩子。最常见的疾病诊断为脊柱关节炎、系统性红斑狼疮和类风湿关节炎。访谈中出现了四个主题：（1）男性存在计划生育方面的担忧，特别是与其疾病的遗传性、生育能力以及药物对其后代健康的潜在影响有关。（2）男性认为疾病导致的疲劳、残疾和/或疼痛损害或将会损害他们为人父母的能力。（3）男性通常不与风湿病医生讨论性功能障碍问题，即使他们认为这是由疾病或抗风湿药物引起的。（4）男性很少与风湿病医生讨论任何计划生育、为人父母或SRH问题；与风湿病医生的性别差异并不影响男性讨论这些问题时的舒适度。
男性表达了与计划生育、为人父母和SRH相关的担忧，但他们很少与风湿病医生讨论这些问题。我们的研究表明，在风湿病临床环境中，一些男性的SRH信息需求未得到充分满足。
