提升德国健康研究的 FAIR 原则：德国中央健康研究中心 COVID-19 项目。

Improving the FAIRness of Health Studies in Germany: The German Central Health Study Hub COVID-19.

机构信息

ZB MED - Information center for Live Sciences, Germany.

University Medicine of Greifswald, Germany.

出版信息

Stud Health Technol Inform. 2021 Nov 18;287:78-82. doi: 10.3233/SHTI210818.

DOI:10.3233/SHTI210818

PMID:34795085

Abstract

The German Central Health Study Hub COVID-19 is an online service that offers bundled access to COVID-19 related studies conducted in Germany. It combines metadata and other information of epidemiologic, public health and clinical studies into a single data repository for FAIR data access. In addition to study characteristics the system also allows easy access to study documents, as well as instruments for data collection. Study metadata and survey instruments are decomposed into individual data items and semantically enriched to ease the findability. Data from existing clinical trial registries (DRKS, clinicaltrails.gov and WHO ICTRP) are merged with epidemiological and public health studies manually collected and entered. More than 850 studies are listed as of September 2021.

摘要

德国中央卫生研究中心新冠病毒 19 号是一个在线服务，提供了对在德国进行的与新冠病毒 19 号相关的研究的捆绑访问。它将流行病学、公共卫生和临床研究的元数据和其他信息组合到一个单一的数据存储库中，以实现 FAIR 数据访问。除了研究特征外，该系统还允许轻松访问研究文件以及数据收集工具。研究元数据和调查工具被分解成单独的数据项，并进行语义丰富，以方便查找。现有临床试验注册中心（DRKS、clinicaltrails.gov 和世卫组织 ICTRP）的数据与手动收集和输入的流行病学和公共卫生研究的数据合并。截至 2021 年 9 月，已有 850 多项研究被列入清单。