Aylward Shannon Marion, Farrell Alison, Walsh Anna, Godwin Marshall, Chafe Roger, Asghari Shabnam
Division of Clinical Epidemiology, Faculty of Medicine, Memorial University, St. John's, NL, Canada.
Health Sciences Library, Faculty of Medicine, Memorial University, St. John's, NL, Canada.
JMIR Res Protoc. 2021 Nov 19;10(11):e28196. doi: 10.2196/28196.
A strong primary care system is vital to overall health. Research on the primary care of people with autism spectrum disorder (ASD) has mostly focused on children. A synthesis of the existing literature related to the quality of primary care for the adult population with ASD would elucidate what is known about the topic as well as inform future research and clinical practice.
The purpose of our scoping review is to describe what is known about the quality of primary care for adults with ASD and identify knowledge gaps.
Prior to beginning the literature search, we reviewed literature related to defining both primary care and primary care quality to establish the context and concept of the research question. The search strategy was designed and executed by a research librarian. The MEDLINE, CINAHL, EMBASE, PsycINFO, and ProQuest Dissertations and Theses databases were searched for relevant literature. Grey literature will include relevant reports from government websites and associations with a focus on ASD. Two members of the research team will independently screen the academic and grey literature. Quantitative, qualitative, or mixed methods study designs involving the quality of primary care services or patient-centered care for adults with ASD are eligible for inclusion in our scoping review. Studies that make it past the full-text review will undergo data extraction and quality appraisal by 2 independent reviewers. The data extraction results will be presented in a tabular format to clearly present what is known about the quality of primary care for adults with ASD; this table will be accompanied by a narrative synthesis. Literature selected for extraction will be coded for themes, which will form the basis of a thematic synthesis. The scoping review will follow the guidance proposed by the Joanna Briggs Institute.
The search of electronic databases was conducted in October 2020, and it returned 2820 results. This research is still in progress. The results from our scoping review are expected to be available by fall 2021.
The results from our scoping review will be useful for guiding future research on the quality of primary care for adults with ASD.
INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): PRR1-10.2196/28196.
强大的基层医疗体系对整体健康至关重要。关于自闭症谱系障碍（ASD）患者基层医疗的研究大多集中在儿童身上。对现有与成年ASD患者基层医疗质量相关文献的综合分析，将阐明该主题的已知情况，并为未来的研究和临床实践提供信息。
我们的范围综述旨在描述关于成年ASD患者基层医疗质量的已知情况，并识别知识空白。
在开始文献检索之前，我们查阅了与基层医疗及基层医疗质量定义相关的文献，以确立研究问题的背景和概念。检索策略由一名研究馆员设计并执行。在MEDLINE、CINAHL、EMBASE、PsycINFO以及ProQuest学位论文数据库中搜索相关文献。灰色文献将包括来自政府网站和专注于ASD的协会的相关报告。研究团队的两名成员将独立筛选学术文献和灰色文献。涉及成年ASD患者基层医疗服务质量或以患者为中心的医疗的定量、定性或混合方法研究设计均有资格纳入我们的范围综述。通过全文审查的研究将由两名独立评审员进行数据提取和质量评估。数据提取结果将以表格形式呈现，以清晰展示关于成年ASD患者基层医疗质量的已知情况；此表格将伴有叙述性综合分析。选定进行提取的文献将按主题编码，这将构成主题综合分析的基础。范围综述将遵循乔安娜·布里格斯研究所提出的指导原则。
2020年10月进行了电子数据库检索，返回2820条结果。这项研究仍在进行中。我们范围综述的结果预计将于2021年秋季公布。
我们范围综述的结果将有助于指导未来关于成年ASD患者基层医疗质量的研究。
国际注册报告识别号（IRRID）：PRR1-10.2196/28196
