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2
Teaching plain language to medical students: improving communication with disadvantaged patients.向医学生教授简明语言:改善与弱势患者的沟通。
BMC Med Educ. 2021 Jul 28;21(1):407. doi: 10.1186/s12909-021-02842-1.
3
A qualitative study of patient and carer experiences with home respiratory therapies: Long-term oxygen therapy and home mechanical ventilation.一项关于患者和照护者使用家庭呼吸治疗的体验的定性研究:长期氧疗和家庭机械通气。
Pulmonology. 2022 Jul-Aug;28(4):268-275. doi: 10.1016/j.pulmoe.2021.05.010. Epub 2021 Jul 8.
4
Patient experience with home respiratory therapies in Portugal: it is time to move forward.葡萄牙患者在家中进行呼吸治疗的体验:是时候向前迈进了。
Pulmonology. 2019 Nov-Dec;25(6):311-312. doi: 10.1016/j.pulmoe.2019.08.003. Epub 2019 Sep 26.
5
Communication difficulties reported by patients diagnosed with idiopathic pulmonary fibrosis and their carers: a European focus group study.特发性肺纤维化患者及其照料者报告的沟通困难:一项欧洲焦点小组研究。
ERJ Open Res. 2019 Jun 4;5(2). doi: 10.1183/23120541.00055-2019. eCollection 2019 Apr.
6
Organization of Home Mechanical Ventilation in Portugal: Characterization of current centers and a pathway to uniformization.葡萄牙家庭机械通气的组织:当前中心的特征描述及统一化途径。
Pulmonology. 2020 Mar-Apr;26(2):84-89. doi: 10.1016/j.pulmoe.2019.05.006. Epub 2019 Jun 1.
7
Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go.家庭呼吸治疗中的患者体验:现状与未来方向
J Clin Med. 2019 Apr 24;8(4):555. doi: 10.3390/jcm8040555.
8
Attitudes and preferences of home mechanical ventilation users from four European countries: an ERS/ELF survey.四个欧洲国家家庭机械通气使用者的态度和偏好:一项欧洲呼吸学会/欧洲肺部基金会调查
ERJ Open Res. 2017 Jun 23;3(2). doi: 10.1183/23120541.00015-2017. eCollection 2017 Apr.
9
Danish Register of chronic obstructive pulmonary disease.丹麦慢性阻塞性肺疾病登记处
Clin Epidemiol. 2016 Oct 25;8:673-678. doi: 10.2147/CLEP.S99489. eCollection 2016.
10
Member Checking: A Tool to Enhance Trustworthiness or Merely a Nod to Validation?成员核对:一种增强可信度的工具还是仅仅是对验证的认可?
Qual Health Res. 2016 Nov;26(13):1802-1811. doi: 10.1177/1049732316654870. Epub 2016 Jul 10.

葡萄牙家庭呼吸护理模式:医护人员视角

The Portuguese Model of Home Respiratory Care: Healthcare Professionals' Perspective.

作者信息

Caneiras Cátia, Jácome Cristina, Oliveira Daniela, Moreira Emília, Dias Cláudia Camila, Mendonça Liliane, Mayoralas-Alises Sagrario, Almeida Fonseca João, Diaz-Lobato Salvador, Escarrabill Joan, Winck João Carlos

机构信息

Microbiology Research Laboratory on Environmental Health (EnviHealthMicro Lab), Institute of Environmental Health (ISAMB), Faculty of Medicine, University of Lisbon, 1649-028 Lisbon, Portugal.

Institute for Preventive Medicine and Public Health, Faculty of Medicine, University of Lisbon, 1649-028 Lisbon, Portugal.

出版信息

Healthcare (Basel). 2021 Nov 9;9(11):1523. doi: 10.3390/healthcare9111523.

DOI:10.3390/healthcare9111523
PMID:34828569
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8623333/
Abstract

Patients' and carers' views regarding the Portuguese model of home respiratory care were recently described, yet the complementary perspective of healthcare professionals (HCPs) is still to be investigated. Thus, this study explored HCPs experience in the management of patients needing home respiratory therapies (HRT), and their perspective about the Portuguese model. A phenomenological descriptive study, using focus groups, was carried out with 28 HCPs (median 42 y, 68% female) with distinct backgrounds (57% pulmonologists, 29% clinical physiologists, 7% physiotherapists, 7% nurses). Three focus groups were conducted in three regions of Portugal. Thematic analysis was performed by two independent researchers. HCPs have in general a positive view about the organization of the Portuguese model of home respiratory care, which was revealed in four major topics: Prescription (number of references, = 171), Implementation and maintenance ( = 162), Carer involvement ( = 65) and Quality of healthcare ( = 247). Improvements needed were related to patients' late referral, HRT prescription (usability of the medical electronic prescription system and renewals burden), patients' education, access to hospital care team, lack of multidisciplinary work and articulation between hospital, primary and home care teams. This study describes the perspective of HCPs about the Portuguese model of home respiratory care and identifies specific points where improvements and reflections are needed. This knowledge may be useful to decision makers improve the current healthcare model.

摘要

最近描述了患者及其护理人员对葡萄牙家庭呼吸护理模式的看法,但医疗保健专业人员(HCPs)的补充观点仍有待研究。因此,本研究探讨了HCPs在管理需要家庭呼吸治疗(HRT)的患者方面的经验,以及他们对葡萄牙模式的看法。采用焦点小组进行了一项现象学描述性研究,研究对象为28名背景各异的HCPs(年龄中位数42岁,68%为女性)(57%为肺科医生,29%为临床生理学家,7%为物理治疗师,7%为护士)。在葡萄牙的三个地区进行了三个焦点小组讨论。由两名独立研究人员进行主题分析。HCPs总体上对葡萄牙家庭呼吸护理模式的组织持积极看法,这在四个主要主题中得以体现:处方(提及次数=171)、实施与维持(=162)、护理人员参与(=65)和医疗质量(=247)。需要改进的方面涉及患者转诊延迟、HRT处方(医疗电子处方系统的可用性和续方负担)、患者教育、获得医院护理团队的服务、缺乏多学科合作以及医院、初级保健和家庭护理团队之间的衔接。本研究描述了HCPs对葡萄牙家庭呼吸护理模式的看法,并确定了需要改进和思考的具体要点。这些知识可能有助于决策者改进当前的医疗保健模式。