Masefield Sarah, Vitacca Michele, Dreher Michael, Kampelmacher Michael, Escarrabill Joan, Paneroni Mara, Powell Pippa, Ambrosino Nicolino
European Lung Foundation, Sheffield, UK.
Respiratory Rehabilitation Division, Istituti Clinici Scientifici Maugeri IRCCS, Lumezzane, Italy.
ERJ Open Res. 2017 Jun 23;3(2). doi: 10.1183/23120541.00015-2017. eCollection 2017 Apr.
Home mechanical ventilation is increasingly used by people with chronic respiratory failure. However, there are few reports on attitudes towards treatment. A web-based survey in eight languages was disseminated across 11 European countries to evaluate the perception of home mechanical ventilation provision in ventilator-assisted individuals and caregivers. Out of 787 responders from 11 European countries, 687 were patients and 100 were caregivers. 95% of patients and 94% of caregivers were from only 4 countries (Germany, the Netherlands, Italy, Spain). The majority of respondents were male and aged 46-65 years. Obstructive lung diseases were proportionally more represented among respondent patients (46%), and neuromuscular diseases (65%) were more represented among patients of respondent caregivers. About 20% of respondent patients and caregivers were not sure of the modality of ventilation. Different interfaces were used, with a minority of respondents in all countries using invasive home mechanical ventilation by tracheostomy. These results may be useful for healthcare providers and policy makers to improve the quality of patients' daily lives.
家庭机械通气越来越多地被慢性呼吸衰竭患者所使用。然而，关于治疗态度的报道却很少。一项以网络为基础、有八种语言版本的调查在11个欧洲国家展开，以评估使用呼吸机辅助的患者及其护理人员对家庭机械通气的看法。在来自11个欧洲国家的787名受访者中，687名是患者，100名是护理人员。95%的患者和94%的护理人员仅来自4个国家（德国、荷兰、意大利、西班牙）。大多数受访者为男性，年龄在46至65岁之间。在受访患者中，阻塞性肺疾病的比例相对较高（46%），而在受访护理人员所照顾的患者中，神经肌肉疾病的比例较高（65%）。约20%的受访患者和护理人员不确定通气方式。使用了不同的接口，所有国家中少数受访者采用经气管造口的有创家庭机械通气。这些结果可能对医疗服务提供者和政策制定者改善患者日常生活质量有用。
