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探索死产致孤女性的社交网络:一项描述性定性研究。

Exploring the Social Networks of Women Bereaved by Stillbirth: A Descriptive Qualitative Study.

作者信息

Popoola Tosin, Skinner Joan, Woods Martin

机构信息

School of Nursing, Midwifery and Health Practice, Victoria University of Wellington, Wellington 6012, New Zealand.

出版信息

J Pers Med. 2021 Oct 21;11(11):1056. doi: 10.3390/jpm11111056.

DOI:10.3390/jpm11111056
PMID:34834407
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8624714/
Abstract

The loss of a baby to stillbirth is a traumatic experience and can lead to secondary losses, such as the loss of social relationships. In Nigeria, stillbirths are a common public health problem. However, limited attention has been given to the social ramifications of stillbirths. This study describes the social networks of women who have experienced a stillbirth and the factors influencing their social networks. Interviews and social network diagrams were used to collect data from 20 women about their social networks before and after stillbirth. Findings suggest that the experience of shame, unmet expectation of support, and a lack of trust led to relationship changes after stillbirth. Most participants met bereavement needs with their existing social networks before stillbirth, but many participants also experienced relationship losses (even among family networks). Information from social network analysis can reveal the risks and strengths inherent in social networks, which can be helpful for the provision of tailored/personalized bereavement care.

摘要

死产导致婴儿夭折是一种创伤性经历,可能会引发继发性损失,比如社会关系的丧失。在尼日利亚,死产是一个常见的公共卫生问题。然而,人们对死产的社会影响关注有限。本研究描述了经历过死产的女性的社交网络以及影响其社交网络的因素。通过访谈和社交网络图,收集了20名女性在死产前后社交网络的数据。研究结果表明,羞耻感、未得到满足的支持期望以及缺乏信任等经历导致了死产后人际关系的变化。大多数参与者在死产前依靠现有的社交网络满足丧亲需求,但许多参与者也经历了人际关系的损失(即使在家庭网络中)。社交网络分析得出的信息可以揭示社交网络中固有的风险和优势,这有助于提供量身定制的/个性化的丧亲护理。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/51e2/8624714/98053d897ef6/jpm-11-01056-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/51e2/8624714/849a1e9e2f9b/jpm-11-01056-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/51e2/8624714/2a0345290fc9/jpm-11-01056-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/51e2/8624714/98053d897ef6/jpm-11-01056-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/51e2/8624714/849a1e9e2f9b/jpm-11-01056-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/51e2/8624714/2a0345290fc9/jpm-11-01056-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/51e2/8624714/98053d897ef6/jpm-11-01056-g003.jpg

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本文引用的文献

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Omega (Westport). 2024 Mar;88(4):1275-1289. doi: 10.1177/00302228211051823. Epub 2022 Jan 7.
2
The impact of cultural beliefs and practices on parents' experiences of bereavement following stillbirth: a qualitative study in Uganda and Kenya.文化信仰和习俗对乌干达和肯尼亚失独父母丧亲体验的影响:一项定性研究
BMC Pregnancy Childbirth. 2021 Jun 25;21(1):443. doi: 10.1186/s12884-021-03912-4.
3
Grief reaction and psychosocial impacts of child death and stillbirth on bereaved North Indian parents: A qualitative study.
北印度丧子父母对孩子死亡和死产的悲伤反应和心理社会影响:一项定性研究。
PLoS One. 2021 Jan 27;16(1):e0240270. doi: 10.1371/journal.pone.0240270. eCollection 2021.
4
Exploring the Social Networks of Bereaved Spouses: Phenomenological Case Studies.探讨丧偶配偶的社交网络:现象学案例研究。
Omega (Westport). 2022 Jun;85(2):268-284. doi: 10.1177/0030222820944062. Epub 2020 Jul 22.
5
Parents' experiences of care and support after stillbirth in rural and urban maternity facilities: a qualitative study in Kenya and Uganda.农村和城市产科机构死产后父母的护理与支持经历:肯尼亚和乌干达的一项定性研究
BJOG. 2021 Jan;128(1):101-109. doi: 10.1111/1471-0528.16413. Epub 2020 Aug 16.
6
The RESPECT Study for consensus on global bereavement care after stillbirth.全球胎儿死亡后丧亲共识的 RESPECT 研究。
Int J Gynaecol Obstet. 2020 May;149(2):137-147. doi: 10.1002/ijgo.13110. Epub 2020 Feb 26.
7
Parents' Experiences About Support Following Stillbirth and Neonatal Death.父母关于死产和新生儿死亡后所获支持的经历。
Adv Neonatal Care. 2020 Apr;20(2):151-160. doi: 10.1097/ANC.0000000000000703.
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Coping After Involuntary Pregnancy Loss: Perspectives of Spanish European Women.非自愿流产后的应对:西班牙裔欧洲女性的观点
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Voices of the unheard: A qualitative survey exploring bereaved parents experiences of stillbirth stigma.未被倾听的声音:一项定性调查,探索失独父母对死产耻辱的体验。
Women Birth. 2020 Mar;33(2):165-174. doi: 10.1016/j.wombi.2019.03.002. Epub 2019 Apr 17.
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