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为什么饮食失调的女性拒绝治疗?一项对专门饮食失调治疗障碍的定性研究。

Why Do Women with Eating Disorders Decline Treatment? A Qualitative Study of Barriers to Specialized Eating Disorder Treatment.

机构信息

Department of Studies and Analysis, National Association against Eating Disorders and Self-Harm, 2500 Valby, Denmark.

Forensic Mental Health Research Unit Middelfart, Department of Regional Health Research, Faculty of Health Sciences, University of Southern Denmark, 5500 Middelfart, Denmark.

出版信息

Nutrients. 2021 Nov 11;13(11):4033. doi: 10.3390/nu13114033.

DOI:10.3390/nu13114033
PMID:34836288
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8623214/
Abstract

Despite the fact that eating disorders (EDs) are conditions that are potentially life-threatening, many people decline treatment. The aim of this study was to investigate why women decline specialized ED treatment, including their viewpoints on treatment services. Eighteen semi-structured qualitative interviews were conducted with women who had declined inpatient or outpatient specialized ED treatment. A thematic analysis revealed five main themes: (1) Disagreement on treatment needs, (2) rigid standard procedures, (3) failure to listen, (4) deprivation of identity, and (5) mistrust and fear. The women had declined ED treatment because they believed that treatment was only focused on nutritional rehabilitation and that it failed to address their self-identified needs. From their perspectives treatment was characterized by rigid standard procedures that could not be adapted to their individual situations and preferences. They felt that the therapists failed to listen to them, and they felt deprived of identity and reduced to an ED instead of a real person. This investigation is one of the first of its kind to provide clues as to how treatment could be moderated to better meet the needs of women who decline specialized ED treatment.

摘要

尽管饮食失调(EDs)是一种潜在危及生命的疾病,但仍有许多人拒绝接受治疗。本研究旨在探讨为什么女性会拒绝专门的 ED 治疗,包括她们对治疗服务的看法。对 18 名拒绝住院或门诊专门 ED 治疗的女性进行了半结构化定性访谈。主题分析揭示了五个主要主题:(1)对治疗需求的分歧;(2)僵化的标准程序;(3)不听;(4)丧失身份;(5)不信任和恐惧。这些女性拒绝 ED 治疗,是因为她们认为治疗只关注营养康复,而且没有满足她们自我确定的需求。从她们的角度来看,治疗的特点是僵化的标准程序,无法适应她们的个人情况和偏好。她们觉得治疗师没有倾听她们的意见,感到自己失去了身份,被简化为一个 ED,而不是一个真正的人。这项调查是首次提供线索,了解如何调整治疗以更好地满足拒绝专门 ED 治疗的女性的需求。

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本文引用的文献

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成人神经性厌食症日间治疗与住院治疗对比:雏菊随机对照试验
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Inaccessibility of care and inequitable conceptions of suffering: a collective response to the construction of "terminal" anorexia nervosa.医疗服务不可及与对痛苦的不公平认知:对“终末期”神经性厌食症建构的集体回应
J Eat Disord. 2023 May 2;11(1):66. doi: 10.1186/s40337-023-00791-2.
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A lived experience response to the proposed diagnosis of terminal anorexia nervosa: learning from iatrogenic harm, ambivalence and enduring hope.对拟诊的终末期神经性厌食症的一种亲身经历回应:从医源性伤害、矛盾心理和持久希望中学习
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为何我能康复:一项关于促进进食障碍康复动机因素的定性研究。
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A framework to conceptualize personal recovery from eating disorders: A systematic review and qualitative meta-synthesis of perspectives from individuals with lived experience.从有过患病经历的个体角度出发来构建进食障碍康复理念的框架:系统综述与定性元综合分析。
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