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应对耐多药结核病:泰国的生活经历。

Confronting and Coping with Multidrug-Resistant Tuberculosis: Life Experiences in Thailand.

机构信息

Faculty of Tropical Medicine, Department of Tropical Hygiene, 68000Mahidol University, Bangkok, Thailand.

Faculty of Public Health, Department of Health Education and Behavioral Sciences, 68000Mahidol University, Bangkok, Thailand.

出版信息

Qual Health Res. 2022 Jan;32(1):159-167. doi: 10.1177/10497323211049777. Epub 2021 Nov 30.

DOI:10.1177/10497323211049777
PMID:34845946
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8739603/
Abstract

In this article, we aimed to understand the life experiences of Thai persons diagnosed with multi-drug-resistant tuberculosis (MDR-TB). A qualitative study using a face-to-face in-depth interview was conducted at a hospital in Thailand which has the highest prevalence of MDR-TB in the country between January and February 2019. Twenty persons living with MDR-TB in Thailand were purposively selected to represent a variety of experiences based on different gender, ages, and treatment phases. Qualitative data were transcribed and thematic analysis was applied to identify common themes and sub-themes. The results indicated that all participants faced emotional difficulties, such as fear of death, fear of stigmatization, confusion, and sadness when first knowing of their diagnosis. Family and social support were the main ways that the patients coped with difficult situations. Suicidal ideas were more prevalent among patients with poor family support. Screening for mental health problems should be routinely performed in MDR-TB patients. Proper health education should be provided to patients and families to reduce emotional difficulties and stigmatization.

摘要

在本文中,我们旨在了解泰国耐多药结核病(MDR-TB)患者的生活经历。 2019 年 1 月至 2 月期间,在泰国一家医院进行了一项定性研究,采用面对面深入访谈的方式进行,该医院是该国 MDR-TB 发病率最高的医院。从不同的性别,年龄和治疗阶段出发,有目的的选择了 20 名泰国 MDR-TB 患者,以代表各种不同的经历。对定性数据进行了转录,并应用主题分析来确定常见的主题和子主题。结果表明,所有参与者在首次得知诊断时都面临着诸如对死亡的恐惧,对污名化的恐惧,困惑和悲伤等情绪困难。家庭和社会支持是患者应对困难情况的主要方式。家庭支持差的患者自杀念头更为普遍。应常规对 MDR-TB 患者进行心理健康问题筛查。应向患者及其家属提供适当的健康教育,以减轻情绪困扰和污名化。

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