Roche D, Murphy M, O'Connor C
Department of Dermatology, South Infirmary Victoria University Hospital, Cork, Ireland.
Department of Medicine, University College Cork, Cork, Ireland.
Clin Exp Dermatol. 2022 May;47(5):949-952. doi: 10.1111/ced.15041. Epub 2021 Dec 21.
Psoriasis is a chronic, hereditary disease with a complex immunopathogenesis, rendering it susceptible to misinformation. Misinformation related to psoriasis can have negative effects both on the public perception of psoriasis and on patients' knowledge of psoriasis. To characterize misinformation related to psoriasis available online, we performed a formal literature review via PubMed and a thematic review via Google. Key themes of misinformation included 'victim-blaming' (hygiene), 'vector' (contagion), 'vaccination', 'vilification' of conventional therapy, 'validation' of natural treatment and diet, 'veneration' of cures and 'vocalization' from celebrities. Misinformation related to psoriasis is pervasive on social media and other websites. Dermatologists, as patient advocates, should be aware of the content of misinformation available online and combat misleading health information to optimize health outcomes for patients with psoriasis.
银屑病是一种慢性遗传性疾病,其免疫发病机制复杂,容易出现错误信息。与银屑病相关的错误信息会对公众对银屑病的认知以及患者对银屑病的了解产生负面影响。为了描述网上存在的与银屑病相关的错误信息,我们通过PubMed进行了正式的文献综述,并通过谷歌进行了主题综述。错误信息的关键主题包括“指责受害者”(卫生问题)、“传播媒介”(传染性)、“疫苗接种”、对传统疗法的“诋毁”、对自然疗法和饮食的“认可”、对治愈方法的“推崇”以及名人的“发声”。与银屑病相关的错误信息在社交媒体和其他网站上普遍存在。皮肤科医生作为患者的支持者,应该了解网上存在的错误信息内容,并抵制误导性的健康信息,以优化银屑病患者的健康结局。