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与智障成年人及其照顾者进行基于理论的定性访谈:为促进参与而进行的调整。

Conducting theory-based qualitative interviews with adults with intellectual disabilities and their carers: Adaptations to facilitate participation.

机构信息

School of Health Sciences, City University of London, London, UK.

Department of Health, Psychology and Communities, Manchester Metropolitan University, Manchester, UK.

出版信息

J Appl Res Intellect Disabil. 2022 Mar;35(2):556-568. doi: 10.1111/jar.12966. Epub 2021 Dec 6.

DOI:10.1111/jar.12966
PMID:34873792
Abstract

BACKGROUND

Adults with mild-moderate intellectual disabilities have difficulties in accessing traditional evidence-based health promotion initiatives despite experiencing health disparities; yet there are few studies with this group and their carers exploring how their needs can be met.

METHOD

This study adapted a behaviour change theory-based approach to interview this group and their carers and ascertain if this method was feasible and appropriate to explore how healthier behaviour uptake could be improved amongst adults with intellectual disabilities.

RESULTS

A community-based, staged recruitment process and iterative approach to data collection and analysis supported successful participation amongst adults with intellectual disabilities in behaviour-change theory-based interview research. Methodological adaptations enabled richer data collection amongst adults with mild-moderate intellectual disabilities and carers.

CONCLUSIONS

It is feasible and important to include adults with intellectual disabilities in qualitative health research that uses theory-based complex constructs to inform development of person-centred health promotion interventions with this underserved cohort.

摘要

背景

尽管成年人轻度至中度智力障碍者存在健康差距,但他们在传统循证健康促进计划方面存在困难;然而,针对该群体及其照顾者的研究很少,这些研究探讨了如何满足他们的需求。

方法

本研究采用基于行为改变理论的方法来访谈该群体及其照顾者,并确定这种方法是否可行且适合探索如何提高智力障碍成年人更健康的行为习惯。

结果

基于社区的分阶段招募流程和迭代数据收集与分析方法,支持了智力障碍成年人参与基于行为改变理论的访谈研究。方法上的调整使轻度至中度智力障碍成年人及其照顾者能够更深入地收集数据。

结论

对于使用基于理论的复杂概念的定性健康研究,纳入智力障碍成年人是可行且重要的,这可以为这个服务不足的群体制定以个人为中心的健康促进干预措施提供信息。

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