Edinburgh Medical School, University of Edinburgh, Edinburgh, UK.
Department of Plastic and Reconstructive Surgery, Royal Hospital for Sick Children, Edinburgh, UK.
J Hand Surg Eur Vol. 2022 May;47(5):475-480. doi: 10.1177/17531934211064185. Epub 2021 Dec 8.
This study aimed to determine whether embryology knowledge or explaining the possible developmental pathway error was important for parents of affected children, and to secondarily determine if there was a relationship between desired knowledge of embryology and disease severity, maternal age group or maternal level of education. Using a self-administered questionnaire, a significant proportion of responding parents considered knowledge of embryology important (32 out of 43). We found a significant association between the importance of embryology knowledge for parents and the disease severity. However, the importance and level of knowledge desired was not related to maternal age or level of education. This study demonstrated the importance of explaining the associated developmental errors in the congenital hand consultation, particularly in severe anomalies. Surgeons should familiarize themselves with embryology to provide an explanation as to why congenital hand differences happen, which may provide better psychological support for parents of these children.
本研究旨在确定胚胎学知识或解释可能的发育途径错误对患病儿童的父母是否重要，并进一步确定对胚胎学知识的期望程度与疾病严重程度、母亲年龄组或母亲教育水平之间是否存在关系。本研究采用自填式问卷，发现相当一部分患儿父母（43 名患儿父母中的 32 名）认为胚胎学知识很重要。我们发现，父母对胚胎学知识的重视程度与疾病的严重程度之间存在显著关联。然而，对知识的重视程度和期望水平与母亲的年龄或教育程度无关。本研究表明，在先天性手部咨询中解释相关的发育错误非常重要，尤其是在严重畸形的情况下。外科医生应熟悉胚胎学知识，解释先天性手部差异发生的原因，这可能为这些患儿的父母提供更好的心理支持。
