Daniels Dee, Wolter-Warmerdam Kristine, Holland Samantha, Hickey Francis
J Pediatr Health Care. 2022 May-Jun;36(3):231-239. doi: 10.1016/j.pedhc.2021.10.003. Epub 2021 Dec 5.
To examine the first Reach Out and Read (ROR) program in a pediatric Down syndrome (DS) clinic in the United States and the literacy behaviors of young children with DS and their families.
This is a large cohort (n = 747) review of children with DS participating in ROR and a family literacy survey (n = 209). Data from the electronic medical records were included.
On average, children with DS began independently reading at 6.15 years (standard deviation = 1.42). Overall, 36.7% of children with visual/audio impairments required additional encouragement. Time spent reading was impacted by the mother's education level. Differences were found among ROR participants with DS for reported favorite activity.
ROR is an important clinic-based literacy program for children with DS. Children with DS attain independent reading abilities similar to typically developing peers when provided appropriate resources. Additional support is needed to encourage reading enjoyment in this population.
在美国一家儿科唐氏综合征（DS）诊所研究首个“伸出援手并阅读”（ROR）项目，以及患有唐氏综合征的幼儿及其家庭的识字行为。
这是一项对参与ROR的唐氏综合征患儿的大型队列研究（n = 747）以及一项家庭识字调查（n = 209）。纳入了电子病历中的数据。
唐氏综合征患儿平均在6.15岁开始独立阅读（标准差 = 1.42）。总体而言，36.7%有视觉/听觉障碍的儿童需要额外鼓励。阅读时间受母亲教育水平的影响。在参与ROR的唐氏综合征患者中，报告的最喜欢的活动存在差异。
ROR是一项针对唐氏综合征患儿的重要的基于诊所的识字项目。当提供适当资源时，唐氏综合征患儿获得的独立阅读能力与发育正常的同龄人相似。需要额外的支持来鼓励这一人群享受阅读。
