Nursing Department, University of Girona, 17003 Girona, Spain.
Health and Health Care Research Group, Department of Nursing, University of Girona, 17003 Girona, Spain.
Int J Environ Res Public Health. 2021 Dec 4;18(23):12801. doi: 10.3390/ijerph182312801.
Fibromyalgia is a chronic and complex disease whose management by patients requires a high level of commitment. Patient empowerment therefore represents an important milestone in chronic disease treatment and control. We explored the impact of a peer social support network from the perspective of women with fibromyalgia.
A generic qualitative design was proposed for the study, for which women who had been diagnosed with fibromyalgia were purposefully selected. Six semi-structured interviews were conducted, and the collected data were thematically analysed.
Three key themes emerged regarding the peer social support network: (1) empowerment (facilitating acceptance of the diagnosis and acting as a source of information); (2) effects on well-being and quality of life (attenuated the stigma, improved physical well-being, provided emotional support and was a socialization medium); and (3), valuable aspects (transmitted feelings of being understood and listened to and increased personal feelings of satisfaction).
A peer social support network for women with fibromyalgia exerts positive effects on their physical, mental, and social well-being and empowers them to better manage their disease. Healthcare for women with fibromyalgia should include strategies that connect them through peer social support networks.
纤维肌痛是一种慢性且复杂的疾病，患者需要高度的自我管理能力。因此，患者赋权是慢性病治疗和控制的重要里程碑。我们从纤维肌痛女性患者的角度探讨了同伴社会支持网络的影响。
本研究采用通用的定性设计，目的是选择已被诊断患有纤维肌痛的女性。进行了六次半结构化访谈，并对收集的数据进行了主题分析。
关于同伴社会支持网络，出现了三个关键主题：（1）赋权（促进对诊断的接受，并作为信息来源）；（2）对幸福感和生活质量的影响（减轻耻辱感，改善身体健康，提供情感支持，是一种社交媒介）；（3）有价值的方面（传递被理解和倾听的感觉，增加个人的满足感）。
纤维肌痛女性的同伴社会支持网络对其身心健康和社会幸福感产生积极影响，并使她们能够更好地管理疾病。纤维肌痛女性的医疗保健应包括通过同伴社会支持网络将她们联系起来的策略。
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