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神经发育评估量表的协同设计:研究方案。

Co-Design of a Neurodevelopment Assessment Scale: A Study Protocol.

机构信息

School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia.

Academic Unit of Child Psychiatry, South Western Sydney Local Health District and Ingham Institute, Liverpool, NSW 2170, Australia.

出版信息

Int J Environ Res Public Health. 2021 Dec 6;18(23):12837. doi: 10.3390/ijerph182312837.

Abstract

Neurodevelopmental disorders are a heterogeneous group of conditions with overlapping symptomatology and fluctuating developmental trajectories that transcend current diagnostic categorisation. There is a need for validated screening instruments which dimensionally assess symptomatology from a holistic, transdiagnostic perspective. The primary aim is to co-design a Neurodevelopment Assessment Scale (NAS), a user-friendly transdiagnostic assessment inventory that systematically screens for all signs and symptoms commonly encountered in neurodevelopmental disorders. Our first objective is to undertake development of this tool, utilising co-design principles in partnership with stakeholders, including both those with lived experience of neurodevelopmental disorders and service providers. Our second objective is to evaluate the face validity, as well as the perceived utility, user-friendliness, suitability, and acceptability (i.e., 'social validity'), of the NAS from the perspective of parents/caregivers and adults with neurodevelopmental disorders, clinicians, and service providers. Our third objective is to ascertain the psychometric properties of the NAS, including content validity and convergent validity. The NAS will provide an efficient transdiagnostic tool for evaluating all relevant signs, symptoms, and the dimensional constructs that underpin neurodevelopmental presentations. It is anticipated that this will maximise outcomes by enabling the delivery of personalised care tailored to an individual's unique profile in a holistic and efficient manner.

摘要

神经发育障碍是一组具有重叠症状和变化发展轨迹的异质性疾病,超越了当前的诊断分类。需要有经过验证的筛选工具,从整体、跨诊断的角度来评估症状。主要目标是共同设计一个神经发育评估量表(NAS),这是一个用户友好的跨诊断评估清单,系统地筛查神经发育障碍中常见的所有迹象和症状。我们的第一个目标是利用共同设计原则与利益相关者合作,包括有神经发育障碍经历的人和服务提供者,来开发这个工具。我们的第二个目标是从父母/照顾者、神经发育障碍患者、临床医生和服务提供者的角度评估 NAS 的表面有效性,以及感知到的实用性、用户友好性、适宜性和可接受性(即“社会有效性”)。我们的第三个目标是确定 NAS 的心理测量学特性,包括内容有效性和收敛有效性。NAS 将提供一种有效的跨诊断工具,用于评估所有相关的迹象、症状和神经发育表现所依据的维度结构。预计这将通过以整体和有效的方式为个人独特的情况提供个性化的护理,从而最大限度地提高结果。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9871/8657806/d1d6759e816d/ijerph-18-12837-g001.jpg

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