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神经发育评估量表的协同设计

Co-design of the neurodevelopment assessment scale.

作者信息

Wong Tsz Ying, Azim Syeda Ishra, Lam-Cassettari Christa, Lin Ping-I, Mendoza Diaz Antonio, Montgomery Alicia, Masi Anne, Mallitt Kylie-Ann, Whitehouse Andrew, Dadds Mark R, Eapen Valsamma

机构信息

School of Clinical Medicine, Discipline of Psychiatry and Mental Health, UNSW Medicine & Health, The University of New South Wales, Sydney, NSW, Australia.

Department of Psychiatry and Behavioral Neuroscience, Saint Louis University School of Medicine, St. Louis, MO, United States.

出版信息

Front Child Adolesc Psychiatry. 2025 Jan 28;4:1497632. doi: 10.3389/frcha.2025.1497632. eCollection 2025.

Abstract

INTRODUCTION

Neurodevelopmental disorders (NDDs) have high comorbidity rates and shared etiology. Nevertheless, NDD assessment is diagnosis-driven and focuses on symptom profiles of individual disorders, which hinders diagnosis and treatment. There is also no evidence-based, standardized transdiagnostic approach currently available to provide a full clinical picture of individuals with NDDs. The pressing need for transdiagnostic assessment led to the development of the Neurodevelopment Assessment Scale (NAS).

METHODS

This paper describes the co-design process used in the development of NAS prototype with stakeholders including individuals with NDDs, parents of children with NDDs, and health professionals.

RESULTS AND DISCUSSION

Results indicated stakeholder consensus that NAS would be useful for NDD assessment, and included recommendations for fine-tuning the way some questions were asked (e.g., child's diagnoses), question flow (e.g., branching logic), and the language and presentation of the prototype (e.g., readability). Stakeholders also suggested the administration protocol should be flexible using electronic, face-to-face, online formats etc.

摘要

引言

神经发育障碍(NDDs)具有较高的共病率且病因相同。然而,NDD评估以诊断为导向,侧重于个体疾病的症状特征,这阻碍了诊断和治疗。目前也没有基于证据的标准化跨诊断方法来全面呈现NDD患者的临床情况。对跨诊断评估的迫切需求促使了神经发育评估量表(NAS)的开发。

方法

本文描述了与包括NDD患者、NDD患儿家长和健康专业人员在内的利益相关者共同设计NAS原型的过程。

结果与讨论

结果表明,利益相关者一致认为NAS对NDD评估有用,并包括了一些关于微调提问方式(如儿童诊断)、问题流程(如分支逻辑)以及原型的语言和呈现方式(如可读性)的建议。利益相关者还建议管理协议应灵活多样,可采用电子、面对面、在线等形式。

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本文引用的文献

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Developmental regression in children: Current and future directions.儿童发育倒退:现状与未来方向
Cortex. 2023 Dec;169:5-17. doi: 10.1016/j.cortex.2023.09.001. Epub 2023 Sep 27.
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Prenatal Environment and Neurodevelopmental Disorders.产前环境与神经发育障碍。
Front Endocrinol (Lausanne). 2022 Mar 15;13:860110. doi: 10.3389/fendo.2022.860110. eCollection 2022.
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Co-Design of a Neurodevelopment Assessment Scale: A Study Protocol.神经发育评估量表的协同设计:研究方案。
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