Advanced Wellbeing Research Centre, Sheffield Hallam University, Sheffield S9 3TU, UK.
Community Wellbeing Service (Specific Identity Withheld).
Int J Environ Res Public Health. 2021 Dec 14;18(24):13191. doi: 10.3390/ijerph182413191.
The COVID-19 pandemic has disproportionately affected people from more deprived communities. The experience of Long COVID is similarly distributed but very few investigations have concentrated on the needs of this population. The aim of this project was to co-produce an acceptable intervention for people with Long COVID living in communities recognised as more deprived.
The intervention was based on a multi-disciplinary team using approaches from sport and exercise medicine and functional rehabilitation. The co-production process was undertaken with a stakeholder advisory group and patient public involvement representation. This study identified participants by postcode and the indices of multiple deprivation (IMD); recruitment and engagement were supported by an existing health and wellbeing service. A virtual 'clinic' was offered with a team of professional practitioners who met participants three times each; to directly consider their needs and offer structured advice. The acceptability of the intervention was based on the individual's participation and their completion of the intervention.
Ten participants were recruited with eight completing the intervention. The partnership with an existing community health and wellbeing service was deemed to be an important way of reaching participants. Two men and six women ages ranging from 38 to 73 were involved and their needs were commonly associated with fatigue, anxiety and depression with overall de-conditioning. None reported serious hardship associated with the pandemic although most were in self-employment/part-time employment or were not working due to retirement or ill-health. Two older participants lived alone, and others were single parents and had considerable challenges associated with managing a household alongside their Long COVID difficulties.
This paper presents the needs and perspectives of eight individuals involved in the process and discusses the needs and preferences of the group in relation to their support for self- managed recovery from Long COVID.
COVID-19 大流行对来自较贫困社区的人产生了不成比例的影响。长新冠的体验也是如此分布,但很少有调查集中在这一人群的需求上。本项目的目的是为生活在被认为较贫困社区的长新冠患者共同制定一种可接受的干预措施。
该干预措施基于多学科团队,采用运动和锻炼医学以及功能康复的方法。共同制定过程是与利益相关者咨询小组和患者公众参与代表一起进行的。本研究通过邮政编码和多项贫困指数(IMD)来确定参与者;通过现有的健康和幸福服务来支持招募和参与。提供了一个虚拟的“诊所”,由一组专业从业者组成,他们每三次与参与者会面;直接考虑他们的需求并提供结构化的建议。干预措施的可接受性基于个人的参与和他们完成干预措施的情况。
共招募了 10 名参与者,其中 8 名完成了干预措施。与现有的社区健康和幸福服务合作被认为是接触参与者的重要途径。参与的 2 名男性和 6 名女性年龄在 38 至 73 岁之间,他们的需求通常与疲劳、焦虑和抑郁以及整体功能下降有关。虽然大多数人处于自营职业/兼职就业或因退休或健康不佳而不工作,但没有人报告与大流行相关的严重困难。两名年长的参与者独居,其他人是单身父母,在管理家庭方面面临着相当大的挑战,同时还要应对长新冠带来的困难。
本文介绍了参与该过程的 8 个人的需求和观点,并讨论了他们在支持自我管理长新冠康复方面的需求和偏好。