General Hospital of Nikaia "Agios Panteleimon", Nikaia, Greece.
General Hospital of Patra "Agios Andreas", Patra, Greece.
Adv Exp Med Biol. 2021;1337:169-175. doi: 10.1007/978-3-030-78771-4_19.
The family members of patients with multiple sclerosis (MS) are called to become carers, playing a vital and difficult role in supporting the patients in their daily life. The aim of this study was to investigate the extent of the multidimensional burden on the carers of multiple sclerosis.
Data were collected from 111 carers with MS patients. The survey was conducted in Patras General Hospital.
According to the research findings, the multidimensional burden of carers is proportional to the severity of the patient's condition. In particular, the majority of patients were in a good kinetic state, so the carers examined felt gentle with a moderate burden. On both scales, Zarit and BAKAS, it was observed that the age of the caregiver, the type of care he provides, and the patient's dependence on him increase the feeling of the burden. Positive results from care improve the caregiver's relationship with the patient, his self-esteem, and his ability to cope with stress. According to the F-COPES scale, it is observed that the relationship between the caregiver and the patient is responsible for accepting the problem; the greater the caregiver's age, the higher the percentage of those seeking help from doctors, social services.
The burden on carers is indisputable; support from family members, social and economic support, and education may mitigate the burden of care.
多发性硬化症（MS）患者的家属被要求成为照顾者，在支持患者日常生活方面发挥着至关重要且困难的作用。本研究旨在调查多发性硬化症照顾者多维负担的程度。
数据来自 111 名多发性硬化症患者的照顾者。调查在帕特雷综合医院进行。
根据研究结果，照顾者的多维负担与患者病情的严重程度成正比。特别是，大多数患者的运动状态良好，因此被检查的照顾者感到负担适中。在 Zarit 和 BAKAS 这两个量表上，都观察到照顾者的年龄、他提供的照顾类型以及患者对他的依赖程度增加了负担感。照顾带来的积极结果改善了照顾者与患者的关系、他的自尊心和应对压力的能力。根据 F-COPES 量表，观察到照顾者与患者之间的关系负责接受问题；照顾者的年龄越大，寻求医生、社会服务帮助的比例越高。
照顾者的负担是不可否认的；来自家庭成员、社会和经济支持以及教育的支持可能会减轻照顾负担。
